Fesemyer races toward her next challenge: A Ph.D.



Jenna Fesemyer’s approach to her academic pursuit matches her attitude on the track (Photo provided)

Jenna Fesemyer’s enduring love of wheelchair racing boils down to two factors. First, like other skill-heavy sports, there always a way to fine-tune her mechanics and improve her craft, she said. 

The second reason is simpler: “I love the feeling of going fast,” Fesemyer said.

While the Ohio-born Paralympian keeps up her competitive pace, she’s also racing toward her next professional challenge: obtaining a Ph.D. in recreation, sport and tourism from the University of Illinois. 

In many ways, Fesemyer’s approach to her academic pursuit matches her attitude on the track. She’s organized, consistent and utterly committed to both disciplines as avenues for personal growth. 

“When I first met her, I worried how she’d manage both being this high-level athlete and doing a Ph.D., which is so time-consuming,” said her advisor, RST Associate Professor Toni Liechty. “But it seems like she takes the same dedication she applies to her training and her sport and she brings that to the Ph.D. She doesn’t do anything halfway.”  

Fesemyer graduated from Illinois’ kinesiology program in 2019 and stayed to earn her master’s degree in education policy, organization and leadership. Initially, she wanted to be a physical therapist, but now has her sights set on becoming a faculty member at a university.  

Now she’s returned to her “intellectual home” in the College of Applied Health Sciences, entering her second year of the RST Ph.D. program. Fesemyer chose RST to focus her research on the psychosocial benefits of sport interventions for youth with physical disabilities and building more inclusive recreation communities. 

“Our faculty is really strong—I’ve enjoyed every single class that I’ve taken so far,” Fesemyer said. “When you have faculty that believes in the power of being in the classroom and passing on their legacy of their knowledge to their students, it makes a big difference. 

“I’m excited to have my own classroom one day.”

Track star without a track

Tracing back, Fesemyer’s future in athletics seemed a far cry from the opportunities she had in hometown Ravenna, Ohio, about an hour south of Cleveland. 

Due to a rare congenital condition known as proximal femoral focal deficiency, she was born without a hip socket. Her high school had an old cinder track, unsuitable for wheelchair sport. 

“It’s interesting how I ended up being a track athlete not having access to a track,” she said.  

So, Fesemyer and her family forged a path of her own; growing up with her two triplet siblings, competed in basketball, volleyball and golf with the use of a prosthetic leg and even threw discus and seated shotput for school track teams. 

Fesemyer attributes a lot of her competitive nature to growing up as a triplet. But sibling rivalry never stood in the way of their bonds: The trio decided to stay in the same classrooms whenever possible.  

“We were always competitive, but we always acknowledged we were teammates and advocates for each other,” Fesemyer said. “Watching them take on this role of constant allies for me as a sibling with a disability, we really have grown a lot together through those different facets. I attribute a lot of who I am to those experiences.” 

In 2013, Ohio’s high school athletics association added wheelchair events to the state track meet. With some persuasion from her parents, Fesemyer began making the half-hour trip east to Newton Falls High School to practice wheelchair racing, and “quickly fell in love” with it. 

As her skills grew and college drew nearer, she began investigating schools that would help to take her talent to the next level. 

She reached out to University of Illinois wheelchair track coach Adam Bleakney and scheduled a visit in fall 2014. Immediately, the fit felt right—the proximity, the academic programs and the history of the school’s accessibility and wheelchair athletics. 

Fesemyer’s application to Illinois was the only one she submitted. 

“I put all my eggs in one basket. I’m very happy it worked out,” she said.  

Early Illinois track practices were a wake-up call, Fesemyer said. She was back at the “bottom of the totem pole” athletically, and training became an all-day endeavor, maintained by constant hydration, good sleep and good fuel. 

What helped her adjustment period was the understated style of Bleakney. His reserved nature and methodical approach to practice and competition appeals to Fesemyer and many of his student-athletes. 

Fesemyer’s “sunny disposition” is near-constant, Bleakney said, to the point where her peers draw on her positivity to keep spirits high in tough practices. 

“(Jenna’s) always had an attitude of comprehensively applying her work ethic, self-discipline and drive to all areas of her life—academics, athletics and work,” Bleakney said. “She shares my philosophy as a coach: We’re training versatile student-athletes who are successful not only in athletics and academics, but in skills that will make them more employable.” 

That approach has carried Fesemyer’s improvement in the sport, culminating in an appearance the 2020 Tokyo Summer Paralympics, where she placed seventh in the women’s 5,000-meter T54 race and shattered her personal best time. 

Three marathons remain for Fesemyer this year: Berlin on Sept. 24, Chicago on Oct. 8, and the New York City race on Nov. 5, which doubles as a Paralympic trial for wheelchair racers to punch their ticket to the 2024 Paris Games. 

“We’ve had a really good block of training over these past couple of weeks and so I’m feeling really good—getting stronger, but also growing in that confidence piece as well,” Fesemyer said. 

Circular moment

Fesemyer’s athletic and academic journeys crossed for in a moment this January when she hosted a wheelchair track clinic in Columbus, Ohio, for middle school and high school athletes. 

While helping adolescent wheelchair athletes with their skills, the clinic served a broader purpose: It set the stage for her pilot academic study, where she’ll revisit Columbus for a follow-up next January. 

“It really was a full-circle moment for me, starting as an athlete in Ohio in wheelchair racing to be able to go back and serve that same community through this wheelchair track clinic,” Fesemyer said. 

So far, her academic endeavors number from collaborating on a paper about inclusivity in recreation centers to working in Department of Kinesiology and Community Health Associate Professor Laura Rice’s lab on a fall prevention project for people with disabilities. 

Fesemyer’s experience in kinesiology has made it easier for her to collaborate across the college, her advisor said. 

“I think she’s a great representation of AHS as a whole, and why our college goes together,” Liechty said. “Because she understands why lifestyle fitness is important, why it’s important for people with disabilities and how organizations or recreation or fitness centers can facilitate that happening in a way that promotes health.

“She’s kind of the epitome of everything we do in this college,” Liechty said.  

Not all of Fesemyer’s contributions take place on the track, classroom or the lab. She recently served as a tour guide for the RST program during summer “Illini Days.” 

Prospective students were particularly interested in her Paralympic resume—despite her best efforts. 

“I don’t know why, but I always try to hide that part of my identity when I give tours because the identity of a student, for me, comes first,” she said. “That’s really important for me to showcase that, because my identity coming to Illinois was always to be a student first and celebrate the opportunity of being an athlete on the side.

“But it’s sports, and students get excited about sports which is great too.” 

As year two of her four-year Ph.D. program begins, Fesemyer is continuously grateful to return to full classrooms and in-person experiences with her graduate cohort. 

“Having that experience with my peers, coming in at the same time and progressing through the program at the same time has been a remarkable experience,” she said. “I believe in working in community and working with others.”

Editor’s note:

To reach Ethan Simmons, email ecsimmon@illinois.edu.
 

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Ian Rice gets NIDILRR funding for Power of Play project



Ian Rice

Ian Rice, a KCH teaching associate professor, received a grant of approximately $4.5 million from the National Institute on Disability, Independent Living, and Rehabilitation Research for his called “Power of Play.”

Rice is the principal investigator and project director for Power of Play, which serves to expand access to and promote use of regular, consistent physical activity, sports participation and active recreation for persons with disabilities through research and development of novel technologies, advanced training and educational techniques, and dissemination strategies.

The mechanism is a  Rehabilitation Engineering Research Centers (RERC) Program, Rice said. The long-term strategy of this project is to remove barriers to participation in recreational, exercise, and adaptive sports often encountered by persons with disabilities, with particular emphasis on equity of access among underserved communities.

Objectives target the domains of community living and participation and health and function of persons with disabilities through research and development of novel recreational technologies, health related products and equipment, and advanced training and educational techniques.

According to Rice, Power of Play will specifically address inclusivity, incorporating proven and emerging technologies and strategies, and making adaptive sports and recreation equipment safe, available, affordable, and reliable to children, adolescents and underserved people.

Rice said the project will involve multidisciplinary collaborations among researchers at University of Pittsburgh and University of Illinois Urbana-Champaign as well as health system and community partners serving people with disabilities. 

Among the research projects Rice and the group plan to accomplish are examining the impact and usability of an air-powered wheelchair (called PneuChair) capable of navigating outdoor environments previously hazardous and/or inaccessible to power mobility users. They also plan to develop and examine safe limits of use for off-road wheelchairs and hand cycles through using safe clinical limits of use tools (CLOUT) methodology and examine functionality usability and enjoyment of an inclusive, home-based smart connected arm cycle for improved overall function and quality of life in wheelchair users.  

The funding spans five years, Rice said.

Editor’s note:

To reach Vince Lara-Cinisomo, email vinlara@illinois.edu.
 

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Laura Rice gets grant to extend TechSAge work



Laura Rice

A “smart” bathroom optimized for safety and mobility disabilities. A tai chi telewellness program. Fall detection devices for wheelchair users. 

All are projects associated with the Rehabilitation Engineering Research Center on Technologies to Support Aging Among People with Long-Term Disabilities, also known as “TechSAge.”

The research of TechSAge is pressing forward after Kinesiology and Community Health Associate Professor Laura Rice received a $4.6 million grant from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) to support another five years of work. 

“We want to make sure people with disabilities are able to live life to their fullest,” Rice said. “We want to make sure as people with disabilities get older, they continue to enjoy the things that they like to do.”

The goal of TechSAge is to meet the needs of people aging with long-term disabilities where they live, work, and play by conducting advanced engineering research and developing innovative technologies.

Recent surveys suggest the needs are pressing: According to current estimates, about 42.5 million Americans report living with a disability, making up roughly 13 percent of the population. That percentage jumps among older adults ages 75 or older, of whom 46 percent report having a disability. 

TechSAge started at Georgia Tech 11 years ago, with then-GT faculty Jon Sanford directing the project with co-directors Wendy Rogers and Tracy Mitzner. Rogers, now a professor in KCH and director of the McKechnie Family LIFE Home research center, moved to the University of Illinois in 2017, and the project’s presence has continued to grow on the Urbana-Champaign campus while the cross-country partnership continued. 

Rogers, Sanford—who is now at Georgia State University—and Mitzner, who is now at Person in Design, will continue as key members of the Leadership Team, along with longtime Project Coordinator, Elena Remillard, now site PI at Georgia Tech. The TechSAge team will continue to engage their vast network of industry partners and community-based stakeholders.  The projects also engage students at all levels, including undergraduates, graduates, and postdocs.

In TechSAge’s third iteration, Rice is the principal investigator, with Rogers continuing as a co-investigator. The Illinois interdisciplinary collaborators include Harshal Mahajan, assistant director of research at the McKechnie Family LIFE Home; Ian Rice, a teaching associate professor in KCH; Katie Driggs-Campbell, an assistant professor in the Department of Electrical and Computer Engineering in the Grainger College of Engineering; Girish Krishnan, an associate professor in Industrial & Enterprise Systems Engineering in the Grainger College of Engineering; and Deana McDonagh, a professor of Graphic Design in the School of Art + Design.  

“I definitely appreciate that they see something in me, and that I can be a part of leading the next several years of this center,” Rice said. “We have a very collaborative process.” 

Rice arrived in year six of the project, after her colleagues spent five years “laying the foundation” of the Center.  One of the initial projects, led by Illinois Professor Wendy Rogers, involves performing a needs assessment to understand the needs of adults aging with long-term disabilities.  These findings have helped to provide design guidance for the rest of the projects associated with the Center. 

In the last five years, the team has focused on ramping up their interventions and technology solutions to assist the aging of people with long-term disabilities. Jon Sanford and Georgia Tech researcher Brian Jones have spearheaded the “SmartBathroom” at the university’s Aware Home to meet the needs of people with mobility disabilities, for example. 

Much of the lab-based research at Illinois has taken place at the McKechnie Family LIFE Home, the research center dedicated to technological innovations in the home environment. One on-site project led by Katie Driggs-Campbell is focused on developing an assistive robot to help older adults who are blind or low-vision navigate through their space.  Another robotics project co-led by Girish Krishnan and Ian Rice will develop a robot shower to enable safe and independent bathing for older wheelchair users. The LIFE Home will be used for preliminary testing in both robot projects.

“Research can be a hard process, we do have to go slow—especially with technology, we need to make sure that we’re developing things properly so that it will be useful and usable to individuals who are beneficiaries of it,” Rice said. Projects emphasize user-centered design and the inclusion of people aging with disabilities in all stages of the R&D process.

That said, some projects are nearing their release to the public, Rice said. TechSAge researchers at Person in Design and Georgia Tech, Tracy Mitzner and Elena Remillard, have adapted a tai chi intervention to support the needs of adults aging with long-term disabilities, using a telewellness protocol to deliver a physical activity and social engagement opportunity in a safe and supportive manner. 

“In these next five years, we have the ability to take these projects to the next level,” Rice said. 

Editor’s note:

To reach Ethan Simmons, email ecsimmon@illinois.edu.
 

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