RST Ph.D. candidate is developing a culturally responsive-sustaining water safety program



RST doctoral candidate and longtime swim instructor Latashia Key says targeted, inclusive swim lessons for young Black girls are crucial in not only decreasing disproportionate drowning rates but to improve confidence and self-esteem. (Photo provided)

Black people have the second-highest drowning rates of any race or ethnic group in the United States, according to a recent report from the Centers for Disease Control, and the rate of drowning increased 28 percent in 2021 from 2019. A large part of this troubling trend is that many Black children and families have limited or no access to swim lessons that could prevent these deaths. Latashia Key, a Ph.D. candidate in the department of Recreation, Sport and Tourism at the University of Illinois Urbana-Champaign and a swim instructor for more than 35 years, knows this well, and she is aiming to change it.

Latashia recently received a grant from the Illinois Association for Health, Physical Education, Recreation, and Dance to fund her research. Her study, “Making Waves to Design an Aquatic program for African American Girls: A Culturally Responsive-Sustaining Swim Lesson and Water Safety Program,” seeks to design, analyze and reproduce what she refers to as “culturally responsive” swim lessons targeted toward young Black girls. Latashia says targeted, inclusive lessons are crucial in not only decreasing disproportionate drowning rates but can also improve confidence and self-esteem through learning an essential lifelong skill.

One contributing factor to low rates of Black swimmers “is the generational trauma” Latashia said. From segregated pools to communities that often didn’t have access to pools, many Black families passed fear of the water, or a general sense that “Black people don’t swim” to their children. Young swimmers often don’t see Black swimmers, lifeguards or instructors in their communities, she said. 

Latashia completed the third iteration of her study in the summer of 2024 in Indianapolis where the Olympic Swim trials were held, which was a perfect backdrop for her program and an opportunity to expose more Black girls to the sport. The program involved collaboration with different local organizations to recruit participants and instructors in the communities where the program was being held. This iteration was conducted over five weeks with the girls meeting two times a week for 45 to 60 minutes, and included lessons in and out of the water. 

Also, instructors taught basic water competency skills such as bobs—which helped children learn to go under water by getting their face wet and blowing bubbles—front and back floats, flutter kicks and jumping into the pool with and without a life jacket. Girls also learned that there are Black women and girls who participate in sports such as swimming, diving, synchronized swimming and water polo. Latashia said some iterations had more involvement from parents but the participation of the children and hearing their reaction to the study was heart-warming.

“I think the biggest takeaway is a culturally responsive program like this is very needed, but also very well received, especially by the parents,” she said. 

RST Associate Professor Toni Liechty, Key’s mentor and advisor, said working closely with the communities in which different iterations were held was crucial in the development of this study. Liechty emphasized how important this study is due to the lack of similar research. “I was really shocked at how few studies have actually been done on the topic, especially when we know that there’s this big drowning gap,” Liechty said. “More research like this is needed to explore the disparities and facilitate swim education. Projects like these happen because there is someone like Latashia who is passionate about addressing the issue and understands the way water experiences can change lifestyles.”

The history of Black people and swimming is long, beginning at the trans-Atlantic slave trade and continuing through 19th century Jim Crow laws and into the 20th century with segregation. Black people were historically kept out of leisure spaces—such as public pools or beaches—reserved for white people, and this lack of access has bled into current times. It was only in 1973 that the Supreme Court ruled that private swim clubs weren’t allowed to deny membership to residents based on race, and harmful stereotypes and a culture of fear still pervade conversations around Black people and swimming. 

That history is why representation was such an important factor in the study, according to Latashia. She spoke about how her undergraduate education at Morgan State University, one of 107 historically black colleges and universities, or HBCUs, made her feel empowered as a woman of color.

“I didn’t realize there were Black professors until I enrolled at Morgan State,” she said. “I understand the impact those educators had on my ability to dream and imagine myself in non-traditional spaces. For this study, it was important to recruit instructors who were African American, knowing the power they can play in teaching others that look like them. I think it is important to actually have the opportunity to impart and empower children to know they can do it. What they saw, what they learned about swimming, and that swimming is for Black people and Black kids and Black girls and Black boys.”

When it comes to the future of her research, Latashia and Liechty hope to be able to develop a strategy for culturally responsive swim lessons that can be translated to any community that wants to implement it and Latashia said some communities she worked with on the research have already expressed interest. Also, she was impacted by the emotional response of the children who participated, and watched their fear and anxiety about swimming dissipate and turn into joy was fulfilling.

“The pool should be fun,” she said. “I think that’s the big thing.”


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Improving clinical practice and quality of life



Marie Moore Channell and Laura Mattie (Photo provided)

Speech and Hearing Science Associate Professors Marie Moore Channell and Laura Mattie have long been interested in the development of communication and life skills in individuals with neurodevelopmental and intellectual disabilities.

Channell directs the Intellectual DisAbilities Communication Lab, where her research team works toward a comprehensive understanding of skills that support day-to-day communication for people with Down syndrome in order to identify and develop strategies for supporting their social and academic success. In Mattie’s Development in Neurogenetic Disabilities Lab, research addresses the early development of individuals with Down syndrome and fragile X syndrome. She, too, aims toward promoting the developmental success and well-being of people with these neurogenetic disabilities.

The scholars’ shared interests have led to fruitful collaborations in the past. They led a team of researchers who used a large, national database developed by the Down Syndrome Cognition Project to characterize variability in IQ, executive functioning, adaptive and challenging behavior, and autism symptomatology among individuals with Down syndrome.

In a paper titled “Capturing cognitive and behavioral variability among individuals with Down syndrome: a latent profile analysis,” published in the Journal of Neurodevelopmental Disorders (2021, 13:16), Channell, Mattie and their co-authors describe three latent classes, or subtypes, of people with Down syndrome that emerged from their analyses.

Those in the “normative” group showed a profile of cognition and behavior that is typically represented in the literature on Down syndrome. Those in the “cognitive” group had lower cognitive scores and adaptive behaviors such as self-care and daily living skills than their peers with Down syndrome, along with high rates of autism symptoms.

Those in the “behavioral” group showed cognitive scores and adaptive behaviors similar to their peers with Down syndrome but had high rates of autism symptoms and challenging behaviors such as hyperactivity and conduct problems. Thus, with a large enough sample size, different patterns of autism symptoms and other characteristics can be seen across individuals with Down syndrome. The ultimate goal in precisely characterizing individual variability within Down syndrome is to optimize daily living through targeted treatments and interventions.

Overcoming diagnostic hurdles

Channell and Mattie currently are collaborating as principal and co-principal investigators on a study funded by the National Institutes of Health INCLUDE Project, which supports research related to the health and quality of life of individuals with Down syndrome. Working with researchers at Emory University, Johns Hopkins University and the Kennedy Krieger Institute, their study seeks to increase understanding of the co-occurrence of autism with Down syndrome to improve its diagnosis and treatment.

“There is a stereotype of people with Down syndrome as happy, social people who can’t have autism,” Channell said. “It’s more common than previously thought, but underdiagnosed.”

Interventions and therapies that people with autism receive could be a beneficial add-on to services offered to individuals with Down syndrome. Part of the problem in diagnosing autism in this population is that autism screening tools that were developed for the general population need to be adapted. To work toward the goal of developing better tools to screen for autism in people with Down syndrome, Channell, Mattie and their collaborators are conducting a nationwide survey of caregivers of youth with Down syndrome in which they are completing existing screening tools and other developmental questionnaires. The researchers will then examine and adapt the screening tools as needed so they can be used by practitioners to determine whom to refer for a full autism evaluation.

They are casting a wide net in hopes not only of representing all the varying abilities within Down syndrome, but also of including groups that are not well represented in the existing research.

“Underrepresentation is a big problem in research related to Down syndrome,” Mattie said. “We have a diverse board of stakeholders, are building relationships with the Black Down Syndrome Association, and targeting rural and Hispanic families as well.”

The questionnaires and other screening tools completed by caregivers are just one element of an autism diagnosis. There also is an in-person evaluation component, which is conducted by either developmental behavioral pediatricians or clinical psychologists who are specifically trained in autism diagnostics and assessment, as well as neuropsychological methods. The difficulty with this aspect of diagnosis is two-fold, Mattie said.

“First, the number of developmental behavioral pediatricians and clinical psychologists with this specialized training is limited, so there’s a bottleneck,” she said. “Also, while they may have expertise in autism, they don’t necessarily know about Down syndrome. So the ability to identify a true co-occurring condition is really lacking.”

Channell and Mattie may be conducting the first large-scale study using the broad screening measures doctors and clinicians give to families when autism is first suspected. Theirs may also be the first study that will explore the use of telehealth to conduct diagnostic evaluations of autism in children with Down syndrome.

“If we can figure out how to make that work, we can increase access to evaluations by specialists,” Channell said. They are working with a clinician at Kennedy Krieger, Natasha Ludwig, who will conduct the evaluations of autism in the telehealth sessions, and with Amy Cohen, director of the University of Illinois Autism Clinic, who will review and “score” the evaluations as well to ensure that evaluation tools will lead to consistent results when used by different clinicians.

With the dual focus on developing effective autism screening and diagnostic tools for individuals with Down syndrome and increasing access to specialists who are skilled in both autism and intellectual disability, Channell and Mattie intend to make a significant and lasting impact on improving the quality of life of a population that has historically been underdiagnosed and underserved. That’s good news for the individuals themselves and their caregivers, as well as the scores of clinicians who dedicate their professional lives to providing the best services possible to their clients.

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