SPICE-Healthcare: Dietary assessments for culturally diverse older adults



A cross-campus team of researchers at the University of Illinois Urbana-Champaign, led by Kinesiology and Community Health Assistant Professor Mina Raj, has received two grants to test an online platform designed to help dietitians, clinicians and food service personnel make dietary assessments and care plans that are tailored to patients’ medical and cultural needs. 

The web-based platform to Support Personalized and Inclusive Cuisines in Environments for Healthcare (SPICE-Healthcare), is in line to receive nearly $120,000 in grant support to test its usability with community partner ClarkLindsey Village and other healthcare organizations. 

“We will conduct usability testing locally but also with clinicians from other parts of the country,” Raj said. 

Raj focuses her research at the College of Applied Health Sciences on healthcare administration and disparities, particularly on supporting the needs of diverse older adults and family caregivers. Her preliminary studies inform the purpose of SPICE-Healthcare. 

Collaborators include KCH Associate Professor Naiman Khan, an expert in nutrition and health behaviors and outcomes; Margarita Teran-Garcia, assistant dean and program leader of Integrated Health Disparities at Illinois Extension; Ian Brooks, director of Center of Health Informatics; and Lisa Gatzke, who leads the User Interface and User Experience Team at The National Center for Supercomputing Applications (NCSA). 

“This team has been in conversations for over a year contributing their expertise in nutrition, community outreach, informatics, and design to come up with the platform that aims to improve health service delivery for culturally diverse older adults,” Raj said. “Working together across disciplines has been pivotal to bringing this idea to reality.”
 
To develop and test this electronic-dietary assessment tool (eDA), the team received a $50,000 seed grant from the Personalized Nutrition Initiative, a University of Illinois project led by the Office of the Vice Chancellor for Research and Innovation, partnered with Carl R. Woese Institute for Genomic Biology and College of Agricultural, Consumer and Environmental Sciences at Illinois.

The Personalized Nutrition Initiative recruits an interdisciplinary group of researchers to investigate ways to optimize human health by making nutrition recommendations based on the individual’s genetics, microbiome and metabolome, along with their dietary history and phenotype. 

Another $68,210 is heading to the project from Illinois Chancellor Robert Jones’ Call to Action Research Program, an annual $2 million commitment that funds research targeting racial inequities and injustices.  

SPICE-Healthcare is meant to assist the growing population of older adults from culturally diverse backgrounds who are enrolling in long-term care services. Many long-term care facilities and hospitals lack inclusive cuisine for different cultural, ethnic and religious identities. 

When food isn’t personalized to these needs and preferences, these older adults face risks of undernourishment, unintentional weight loss, or overburdened family caregivers, investigators say. 

Interviews with institutional leaders at ClarkLindsey and other community organizations suggested that a “point of care” resource to improve culturally tailored nutrition assessments was sorely needed. 

The first phase of the platform, a click-through prototype electronic-dietary assessment, is almost ready for testing, Raj said. 

“We will then continue working with our collaborators at NCSA to refine the tool to be culturally tailored,” she said.

Editor’s note:

To reach Ethan Simmons, email ecsimmon@illinois.edu.
 

Related news

Raj partners with ClarkLindsey to test culturally diverse seasonings



ClarkLindsey’s executive chef, DeAngelo Newson, presents a special Hanukkah dinner for residents: beef brisket with latkes and sufganiyot. In 2025, ClarkLindsey food personnel will test out culturally diverse seasonings as part of a KCH research project.

For many older adults from diverse cultural backgrounds, reluctance to enroll in long-term care facilities may start in the cafeteria. 

Mina Raj, an assistant professor in the Department of Kinesiology and Community Health at the University of Illinois Urbana-Champaign, surveyed 140 Asian American family caregivers and found that one of the biggest obstacles for their relatives living in long-term care is the lack of culturally relevant food options. 

An upcoming research project from Raj and her team will put an international range of seasonings to the test at an eager local retirement community.  

Raj will organize a live culinary workshop at ClarkLindsey, a retirement community in Urbana. The workshop is aimed at educating ClarkLindsey’s food personnel how to incorporate culturally diverse seasonings (i.e., herbs or spices) into common dishes. Afterwards, personnel and residents will learn about the seasonings and taste the modified meals for themselves.  

“I realized I need one place that is willing to work with us,” Raj said. “If you can build evidence in one place and show something works, you can have that data to start convincing others a model like this could work.”  

The hope, Raj said, is the workshop will provide some proof of concept for other long-term care facilities that are trying to enroll a more diverse clientele, while potentially reducing food waste and promoting cultural inclusivity.  

The study is funded by a two-year grant from the McCormick Science Institute, which sponsors research on the health effects of culinary herbs and spices. The population at ClarkLindsey, with its longstanding research connections with the College of Applied Health Sciences and Illinois at large, is ready and willing to participate. 

“As people grow older, often the dining experience is the highlight of their day, having good food with good community and good conversation,” said Laura Edwards, vice president of strategy & innovation at the nonprofit retirement home. “I’m really excited to see where this goes.”

A logical connection 

When she began exploring the topic with registered dietitians and food service directors in long-term care facilities in a project funded by the Center on Health, Aging, and Disability, Raj met some resistance to the idea of incorporating a more diverse set of ingredients into LTC menus. 

Professionals she surveyed worried that lack of cultural knowledge among their food personnel and the cost of ingredients would pose significant barriers to a culinary revamp, especially if their resident populations were majority White and most familiar with American/Western cuisine. 

However, the consequences of excluding dietary desires of culturally diverse older adults could be wide ranging, Raj posits. Many populations of these cultures will need significant institutional care in the coming decades, and refusal to eat the food at long-term care facilities could lead to negative health outcomes, including frailty. This can often place substantial additional demands on their family members to prepare and deliver meals.

A leading candidate for collaboration emerged just across town. The College of AHS’ Wendy Bartlo, assistant director of strategic initiatives and research relations, serves on ClarkLindsey’s board. She connected Raj with Edwards, who organizes research opportunities at the nonprofit retirement home. 

Edwards, an AHS alumna who obtained her B.S. in Community Health in 2012, began working at ClarkLindsey as an intern just before graduating. She’s seen the frequent research collaborations with College of AHS and Illinois led by an astute, participatory resident population, and this project fit the bill perfectly. 

“Whenever we hear about interesting research that could benefit the lives of older adults, we are very interested to know more, because it’s our mission to ensure older adults can live their best lives,” Edwards said.  

According to recent data, most ClarkLindsey residents are connected to the university in some way. In 2018, 42 percent of them were Illinois alumni and 57 percent were current faculty or emeriti. More than a quarter of the near-300 residents had reportedly participated in Illinois research. 

“If there’s an opportunity to participate in research, our residents are very eager to get involved,” Edwards said. “Why these projects are so successful is these [professors] feel like they’re defending their dissertation again, because they’re getting questions right and left.”

ClarkLindsey’s executive chef, DeAngelo Newson, already experiments with cross-cultural dishes with his staff. Residents usually choose between a traditional “option A” for dinner or a more adventurous “option B”— recent examples include Indian cuisine, oxtail, and Hanukkah-themed latkes and sufganiyot. 

“I anticipate it being a popular and exciting experience for our residents and for our staff as well,” Edwards said. 

The plan

This year, Raj and her team, including her doctoral student Ammarah Mashhood and undergraduates Sabeen Sadruddin and Harshita Varanasi, will conduct another nationwide survey of dietitians and food service personnel working in long-term care to understand their awareness of culturally diverse seasonings and ability to prepare meals with those ingredients in mind. 

In 2025, planning for the workshop will commence. 

In the current agenda, ClarkLindsey food personnel will be treated to an educational session on the use and history of the seasonings on day one of the workshop delivered by chefs from the McCormick Science Institute. Then, they’ll witness two demonstrations from South Asian and Hispanic/Latin American dietitians on culturally tailored meals that are both diabetes-friendly and heart-healthy, followed by taste panels and acceptability surveys.

(Luis Gutierrez-Munoz, a nutritional sciences master’s student, will help develop these specialized recipes.) 

The meals will include common vegetables and culinary staples such as green beans, potatoes and rice, prepared and seasoned in different ways, Raj said. She’s particularly excited to see how personnel and residents respond to the educational part of the exercise, and whether their cultural awareness shifts after the workshop. 

“We want to emphasize the “why” in this workshop. Most trainings on diverse cultures focus on the “what,” but when it comes to food every culture has a rich history of culinary traditions and norms. Teaching about, and ultimately incorporating culturally diverse seasonings, could present a meaningful, and low-cost, approach to raising awareness among staff and sense of belonging for our diverse older adults,” Raj said.

Editor’s note:

To reach Mina Raj, email mraj@illinois.edu.
 

Related news

AHS researchers: Give ADRD caregivers more information in clinical trials



Mina Raj’s research focuses on the ways family caregivers can be better integrated into healthcare settings and teams (Photo provided)

For clinical trials centered on individuals with Alzheimer’s disease and related dementias, what types of information are family caregivers given during the research process? A research team nested in the College of Applied Health Sciences recently evaluated that question by analyzing ADRD trials from the past 30 years. 

What they found in their report, published in Alzheimer’s & Dementia: The Journal of the Alzheimer’s Association, was that less than half of the clinical trials the researchers sampled specified the caregivers’ responsibilities. 

Given that caregivers are often surrogate decision-makers for participants and are responsible for multiple tasks throughout a clinical trial, the finding stuck out.

“The people who are finding these trials are often caregivers, they’re probably deciding whether to enroll their relatives and whether they have the bandwidth to support their relative through that intensive process,” said co-author Mina Raj, assistant professor in the Department of Kinesiology and Community Health. “And yet less than half of the time they’re given information about what they’re supposed to do.” 

For this report, funded by the Center for Social and Behavioral Sciences at the University of Illinois, Raj collaborated with Raksha Mudar, professor in the Department of Speech and Hearing Science at Illinois, and Dr. Vania Leung, a primary care physician in UI Health, which is part of the University of Illinois Chicago, and an assistant professor of Clinical Medicine at UIC. 

Two Community Health students took a prominent role in the report: Armando Miranda, who graduated with his master’s degree in the spring, and Eve Rubovits, currently a senior in the program. 

Raj’s research focuses on the ways family caregivers can be better integrated into healthcare settings and teams. The report’s topic arose from a separate study Raj conducted a couple of years ago, which centered on Asian American family caregivers, she said. The study combined qualitative interviews and surveys to learn about the caregivers’ challenges navigating the healthcare system. 

What consistently came up, Raj said, were the difficulties of handling the intensity and demands of clinical trials. 

“Dementia is underdiagnosed and underreported due to diagnostics that are not culturally relevant along with stigma within these communities,” she said. “Caregivers in our study experienced a lot of problems getting their relatives enrolled in clinical trials for Alzheimer’s and dementia-related diseases.” 

For example, a lot of trials expect that participants are fluent in English, which would imperil results from screening measures such as word recall tests. Caregivers have additional responsibilities in these situations, including translation, and they are often overwhelmed and underinformed about their responsibilities.

“This led to the question, what are study teams actually telling participants and caregivers about their responsibilities?” 

To expand on that question, the team dug deep into ADRD clinical trials, sampling from more than 250 trials completed between 1990 and 2021. 

The two students, Rubovits and Miranda, spearheaded the data analysis, qualitatively coding information from relevant study information pages on clinicaltrials.gov, a website commonly used to identify clinical trials. The pair also reviewed the trials to evaluate how many trials included information on caregivers’ responsibilities, and what types of responsibilities were reported. 

Rubovits joined Raj’s lab after her freshman year through the Students Pursuing Applications, Research and Knowledge program, also known as SPARK, which connects AHS undergrads to research opportunities. Six months of poring through clinical trial data was the most involved Rubovits felt in any academic study. 

“I definitely learned a lot more technical and hard-research skills,” she said. “Having a mentor like Dr. Raj, and working with grad students like Armando has been so helpful, and has honestly shaped my career goals toward wanting to do research.” 

Their findings that less than half of the analyzed trials contained instructions for caregivers gave way for a proposal: Clinical trials for ADRD should consistently provide caregivers information about their responsibilities.  

“At a baseline, we need to tell our caregivers things like how many times per week they’re going to be transporting their relative back and forth to the study site. We need to tell them the risks and benefits to participating,” Raj said. “Often [instructions] are not clear or accessible, for example through different languages. In other cases, no information is provided at all.” 

Researchers are already approaching new ground based on the study’s finding: The broader goal was to understand how to include racial and ethnic minority adults in clinical trials by engaging their family caregivers, Raj said. She has surveyed more than 100 Asian American, Hispanic and Latino caregivers for what information they’d seek in clinical trials for ADRD patients. 

“We wanted a baseline understanding of how caregivers are involved right now—this was the first step,” Raj said. “We haven’t really asked caregivers what types of information they want to see in those information pages to prepare them for caregiving responsibilities, and that’s what we’re doing right now.” 

Editor’s note:

To reach Ethan Simmons, email ecsimmon@illinois.edu.
 

Related news

A Few Minutes With … Mina Raj



Transcript

VINCE LARA: Hi, and welcome to another edition of A Few Minutes With, a podcast that showcases Illinois’ college of Applied Health Sciences. I’m Vince Lara. And today I’m speaking with PCH Assistant Professor Mina Raj about why she chose Illinois, teaching during a pandemic, and her research with caregivers of older adults. So Mina, thanks so much for speaking with me today. I always try to find out about faculty and how they got their start, especially new faculty like yourself. So did you always want to teach?

MINA RAJ: Thank you so much for doing this with me today, this podcast. So I have always enjoyed teaching. And I did look forward to it, especially since my experiences of teaching as a graduate student. As a graduate student, I think it’s been really rewarding to observe students evolve in their critical thinking about a topic over the course, form evidence-based opinions about different topics, and especially policies in the health care classes that I teach, and discover new aspects of our health care system that they are passionate about but they didn’t necessarily understand, though they can resonate from their personal experiences as being patients.

VINCE LARA: Yeah, interesting. I wonder, typically, when a person goes into research, there’s something that sparked their agenda, what they wanted to look into. And one of your primary research agendas is incorporating caregivers into health care. And I’m curious what made you look into that? What was the impetus for doing that kind of research?

MINA RAJ: Sure. So during my PhD, my dissertation research was focused on understanding how older adults and their family caregivers make decisions about geriatric care. So geriatrics is the medical field that specializes in the care for older adults, especially those with complex clinical conditions. And then some other projects where I was working to understand patients with cancer, it was kind of a similar situation of recognizing that family caregivers are really influential in health care and in medical decision making.

But they aren’t really talked about that much in policy in that way. So the way we think mostly about family caregivers are their assistance with things like eating and dressing and transportation and meal preparation. But they’re really kind of neglected from health care conversations. And I think my research seeks to really help caregivers because these are the people that are supporting patients who are going through intense challenging periods of their lives. And so seeing this major gap in our policies and in research led me to want to focus on supporting caregivers so that they can support their care recipients.

VINCE LARA: Mm-hmm. I want to take a step back. I meant to ask you first, what made you choose Illinois?

MINA RAJ: Yeah. So that’s a great question. There was a lot that I enjoyed. When I visited Illinois, I found the first thing that struck me was how supportive and what an emphasis there is on the campus on collaboration within the department, as well as across the departments.

So I’ve already sort of started forming teams with people in fields that I previously knew very little about, and I’m learning so much. And it’s really nice to think outside the box and get to be creative. And that’s my other point is that it seems like the kind of place where I can be very creative, a place where your ideas can really translate into different types of technology or different types of policies. And seeing ideas come to fruition like that was something that really sparked my interest in Illinois.

VINCE LARA: Mm-hmm. One of the things that you also look at, switching back to your research, is you look at technology to support caregivers. And I’m wondering what sort of technology do you use?

MINA RAJ: Yeah. So I examine a variety of different technologies. So for instance, within health technology, there’s the electronic health record, which if you go to the doctor’s office, you might sign onto your patient portal before you go to the office in order to fill out a questionnaire. Then when you go to your doctor’s office, your doctor might be on the computer filling out information about you into the electronic health record or the computer system. And so this is one type of technology that I look at in terms of policies or design to integrate caregivers so that they can access their care recipient’s patient portal or health record.

Another type of technology to look at is telemedicine. And in the past several months, we’ve seen a huge shift to telemedicine visits for health care. So this is where a patient might visit their doctor through a phone or through video conferencing. And so, again, how do we allow caregivers to be part of that visit? We know that caregivers often assist their relatives to the doctor’s office, may take notes, may provide the doctor with more information about the patient’s concerns, and how do we make the same situation happen when we’re doing care over telemedicine.

VINCE LARA: Mm-hmm. You reference telemedicine. And obviously, telemedicine has become an important part of how we treat people and that’s because of the pandemic. And I’m wondering, how has the pandemic changed how you teach and also how you conduct research?

MINA RAJ: Sure. So in terms of my research, I would say that it has led me to shift a little bit more to survey research. I’m a mixed-methods researcher. So I do primary data collections through surveys, interviews, focus groups, as well as secondary data. And so I’ve really been focusing on developing online surveys and analyzing secondary data.

I have missed being able to interview key participants and conduct focus groups. I’ve done a little bit of that through virtual modes. But it’s a little bit different. You don’t really get to form the same type of relationship with your participants, which is key to building trust in the context of research, especially.

And so I think that’s a similar situation in terms of teaching, where I’ve definitely seen a lot of positive benefits of online teaching. I think, for instance, I’ve noticed that students may even be more comfortable with speaking up in class. I think there are a lot of really great polls and breakout rooms and other opportunities for creating an interesting classroom environment. But again, one of the things I miss is that face to face, walking into the classroom, and seeing students and getting to know them in a different way and feeling the enthusiasm in a room when students understand a concept that relates to something in their lives that they’ve experienced.

VINCE LARA: Mm-hmm. I’m interested in your most recent publication. In it, you looked at characteristics that helped shape medical trainees and their specialties in treating geriatrics. And you spoke about geriatrics earlier. What kind of characteristics do you mean when you talk about the characteristics that help shape their specialties?

MINA RAJ: Sure. So I drew upon a sociological framework for that particular study that says that the way that we decide what career or specialty in medicine we go into– this can actually apply to any career; it’s actually called a model of careership– is a combination of personal experiences, our social network and social circle and those experiences, and then institutional characteristics. So this can be the school that we are educated in, the medical institution that we go to and get our training in. And so we have a really significant workforce shortage in geriatrics.

We need over 20,000 geriatricians in order to meet demand for our current aging population. And so geriatrics happens to be a pretty new field that was really developed in the 1980s. And we’ve had problems with recruiting medical trainees to go into geriatrics.

Now, one of the earlier areas of discussion was that medical trainees may have poor attitudes towards aging and may not really understand the aging process and may think of it negatively. And so a lot of institutions have implemented training and skills and exposure to older adults in order to mitigate the effect of that characteristic. And so I felt like that didn’t solve the whole problem.

There’s still something missing in our understanding of what’s going on. So I decided in that study to focus on those three characteristics, so personal, social, and institutional. And what I found was that institutional characteristics were particularly influential in this qualitative study of trainee interest in geriatrics.

So this can include things like do you have many geriatricians in leadership positions who are role models to medical trainees and teach medical trainees about what it means to be a geriatrician? How close by are geriatrics clinics to where residents are training? So that’s another way that different institutions can influence the exposure of their trainees have to geriatrics and also make them feel like it’s a different type of medicine. It’s a complex type of medicine. And it requires different skills. But it’s still medicine.

And so I think one of the main conclusions of the paper is that we need to expand our understanding of complexity in medicine. It can be knowing a lot about an organ system or about a part of the body. But it can also mean knowing about the lifespan and knowing about the health care system and an older adult’s social and economic circumstances.

VINCE LARA: I know researchers are always looking at what’s next, right? You have to always think about publishing. So I wonder, what’s next for you? Like, what do you hope to tackle next? And I know you’re building collaborations here at UIUC. And so what do you have on the horizon?

MINA RAJ: Sure. I so my main area is going to continue to be looking at different ways of designing technologies and policies to integrate family caregivers into health care teams. And so this involves both what do these technologies look like and then in addition, what do our policies need to look like in order to make sure that this integration is both effective and also safe? So for instance, if caregivers can see their older relative’s medical record, we want to make sure that we have policies in place to protect patient privacy and caregiver privacy and make sure that caregivers aren’t discriminated against in a workplace because maybe they have certain health risks. And so that is really what I see as the primary area of my research agenda.

Another project that I’m really excited about and I’m working on right now is actually a text-based survey of youth across the United States. So these are adolescents aged 14 to 24. And so this text-based text message-based survey, prompts qualitative responses. And the questions that I have asked are to get a sense of how young adults and youth in the US think about family caregiving and their potential for being a family caregiver in the future, including what policies or educational practices or health care practices they perceive meeting in order to carry out potential caregiving responsibilities while promoting their well-being and their educational and professional success.

VINCE LARA: My Thanks to Mina Raj. For more podcasts on Illinois’ College of Applied Health Sciences, search A Few Minutes With in iTunes, Spotify, IHeartRadio, radio.com, and other places you get your podcast fix. Thanks for listening and see you next time.

Share on social

Related news

Raj gets CHAD grant to examine inclusive diets in long-term care



KCH Assistant Professor Mina Raj received a grant from the Center on Health, Aging, and Disability for her project entitled, ““Towards the development of guidelines for inclusive foods in long-term care.”

The CHAD Pilot Grant, which is valued at for $29,646 for 18 months starting July 1, aims to find out more about resident preferences for inclusive diets from the perspectives of long-term care (LTC) personnel, and understand the practice and regulatory barriers and facilitators to promoting inclusive diets in long-term care facilities in order to ultimately develop guidelines for implementing inclusive diets in long-term care facilities.

An inclusive diet, as defined in this study, is one that considers dietary preferences that may be informed by cultural norms or traditions.

The study is important, Raj said, because, “Food is a fundamental aspect of community and is also tied to mental and physical health outcomes. For instance, eating traditional foods has been linked with promoting joy and delight among patients with dementia.”

“We have an increasingly diverse aging population, and as our health system pursues health equity and addressing health disparities, it is critical to understand how to ensure that long-term facilities promote inclusiveness and belonging,” she said. “Even though the number of racial and ethnic minority older adults living in long-term care facilities in the U.S. has increased substantially in the last few decades, these older adults are still very reluctant to reside in long-term care facilities and a primary concern is the alignment of dietary preferences and options offered in facilities. Availability of preferred foods that align with cultural norms and traditions could promote food consumption thereby reducing the risk of frailty and associated health conditions among older adults.”

Another of the study’s goals is to identify regulatory barriers to inclusive diets in LTC facilities. For example, one regulatory barrier is the vendors or grocery stores from which LTC facilities are allowed to purchase prepared meals or ingredients for cooking in the facility. The vendors may not offer inclusive diets or grocery stores may not sell produce needed to prepare meals that are traditional to certain communities, Raj said. Raj said she hopes this study can inform modification of these types of regulations and contribute to inclusion and health equity in LTC facilities..

Raj said the study will focus on long-term care facilities across Illinois, Michigan and Indiana.

Share on social

Related news

College of Applied Health Sciences
110 Huff Hall
1206 South 4th Street
Champaign, IL 61820
(217) 333-2131