A Few Minutes With … Susannah Scaroni



Paralympic medalist Susannah Scaroni (Getty Images)

College of Applied Health Sciences media relations specialist Vince Lara speaks with two-time Paralympian Susannah Scaroni, who is training at Illinois for the 2020 Games in Tokyo.

Transcript

VINCE LARA: Hello, this is Vince Lara in the College of Applied Health Sciences at the University of Illinois. Today I spend a few minutes with Susannah Scaroni, two-time Paralympian who’s looking for her third trip to the games in 2020 in Tokyo.

Well I’m speaking with Susannah Scaroni, who is a 2020 Paralympian hopeful, we’ll say–

SUSANNAH SCARONI: Yes.

VINCE LARA: –if that sounds right to you.

SUSANNAH SCARONI: Yes.

VINCE LARA: And you also competed in 2016 in Rio, so this will be your second games.

SUSANNAH SCARONI: Also 2012.

VINCE LARA: Wow, so this will be your third.

SUSANNAH SCARONI: Hopefully will be the third.

VINCE LARA: Hopefully it will be the third for you.

SUSANNAH SCARONI: Yeah.

VINCE LARA: Well, let’s talk about where you got your start in racing.

SUSANNAH SCARONI: Well, I grew up in a little tiny farming community in eastern Washington. And I was fortunate enough to be close to Spokane, Washington, just about an hour away. But there’s an adaptive sports program for youth there. So I learned about it through Shriners Hospital and immediately fell in love with it.

So I started out on the ParaSport Spokane team. And when you’re in that world of adaptive sports, you learn about the University of Illinois. They have been just such a powerhouse with wheelchair athletes for decades. So I applied to come here, and here I am. And I love it.

VINCE LARA: Yeah, that was going to be my next question is that you’re from the Pacific Northwest, and you ended up here. So obviously coach Bleakney’s reputation preceded him, and that was part of why you decided to come here.

SUSANNAH SCARONI: Absolutely. Yeah. So I went to school a couple years in Montana before I came here, just based on financial reasons. But the second year I was there, coach Adam, he gave me a call and was like, hey, I don’t know– are you still interested in coming?

Because we have this other funding opportunity now. And so I was. After even two years of training on my own and doing my own thing, I still loved racing. I had my racing chair out there with me and decided to transfer over in 2011.

VINCE LARA: That’s amazing. Now, we talked about you were in 2012 and 2016. So let’s say you’re one of the veterans on the team. Because a team, you have people as young as 19.

SUSANNAH SCARONI: Right, exactly.

VINCE LARA: So do your teammates come to you for advice, and is that mentor role something you like?

SUSANNAH SCARONI: Yes and yes, and especially more recently I’ve been realizing more and more that we have new waves of freshmen coming in, and I’m in my third year of grad school now. And just being able to be this wealth of knowledge for a whole host of reasons, whether it’s living independently at college, whether it’s navigating accessible areas on campus, or I’m really passionate about nutrition. So there are some questions about nutrition and training and not doing certain things downstairs, like being tiny. All of these experiences are things I love to share with the new athletes that come in.

VINCE LARA: Now, this being potentially your third, do you look ahead to 2024 already? Or are you saying to yourself, this might be my last one? Especially when you are in school.

SUSANNAH SCARONI: That’s a good segue into that question because I have thought about this. But one thing I also really love in my career is the role model aspect of it. So right now we’re at a really cool part of wheelchair marathon awareness because Abbott World Major Series has a wheelchair division now. And I can still foresee myself continuing to push that wave of women wheelchair racers while the next group gets up to that point.

But it kind of sort of depends on where that is. There’s a lot of women I race with that are all within the same age. And so I wouldn’t want us all to stop at one time, and then all that really hard work just kind of go down a little bit. So I might see how it goes, see where the rest of the world is and the rest of the US females, and keep racing. I’m also not entirely sure yet.

VINCE LARA: OK. Well, what are your plans– well you just talked a little bit about your plans. You’re training to become a registered dietitian here at Illinois.

SUSANNAH SCARONI: Yes.

VINCE LARA: And so what’s after sport?

SUSANNAH SCARONI: Yeah, well, that’s a great question. The way I sort of foresee my career goals, I would love to be a sports dietitian with US Paralympics. I think it’s great to– nutrition is a basic field. But when you can apply it and adapt it to para athletes, I think having been one will add a really nice element to the advice I can give in the future. So I want to just try it out and see what it’s like being a sports dietitian.

And I haven’t completely thrown out the possibility of continuing research. There’s a lot of things that need to be studied in para athletes still. So I’ve really enjoyed sports physiology as well as nutrition science in my grad school program so far. So I think I could see that being a possible future thing to do as well. Yeah.

VINCE LARA: My thanks to Susannah Scaroni. This has been A Few Minutes With.

Related news

Podcast: A Few Minutes With … Daniel Romanchuk



Daniel Romanchuk (Getty Images)

Vince Lara, media relations specialist at the College of Applied Health Sciences at the University of Illinois, spends a few minutes with Daniel Romanchuk, 2016 Paralympian who’s training at Illinois for a spot in the 2020 games in Tokyo.

Transcript

VINCE LARA: Hello. This has Vince Lara and the College of Applied Health Sciences at the University of Illinois. Today, I spent a few minutes with Daniel Romanchuk, 2016 Paralympian who’s training at Illinois for a spot in the 2020 games in Tokyo. All right. I’m speaking with Daniel Romanchuk who is a 2020 Paralympic trainee hoping to make the team for the Tokyo games. So, Daniel, you started with the Bennett Blazers. But I want to go back a little bit before that. When did you know that sports was something you wanted to do?

DANIEL ROMANCHUK: Ooh. So I started with the Bennett Blazers when I was two years old. Sports has always just been a part of my life. So I’m not sure if there was ever really a moment where I was like, oh, I want to play sports. I got started in wheelchair racing with the Bennett Blazers when I was, I believe, around four years old.

VINCE LARA: Wow.

DANIEL ROMANCHUK: And, so yeah. With that program, a lot of kids just tried everything. You didn’t have to really stay in anything, but you’d try it to see if you’d like it and kind of just go from there. If you liked it, of course you can stay in it. Also I think a little bit with your question, their motto is actually, tell kids they can before they’re told they can’t.

VINCE LARA: Wow, that’s great.

DANIEL ROMANCHUK: We’re athletes. And so there’s never really been, to me, oh, well I can’t play basketball. I can’t do this. There’s really never been any of that really in my life.

VINCE LARA: Which is great. You’re from Maryland, which is where the Bennett Blazers are located. But how did you end up training here at Illinois? And is it a testament to Coach Bleakney that you ended up here? Had you known about Coach Bleakney before getting here?

DANIEL ROMANCHUK: So I grew up in the Mount Airy, Maryland, about a half hour outside of Baltimore where the sports program was located. And then it was just over four years ago that I was training all on my own. We’d eventually gotten in contact.

We had asked the high performance director, at that time, are there any training facilities or anything that I maybe can go train at? Because I wanted to try and make the 2016 games. And so after them kind of looking around a bit, we got put in contact with Adam Bleakney. And so he had let me come out and train, at first kind of intermittently. And then we moved out here.

VINCE LARA: Wow. When you say you were training on your own, how did you even know how to train?

DANIEL ROMANCHUK: I would say my mom did a lot of that. So we would just basically go out to there’s a cul-de-sac that I would just do repeats on. It was a slight hill. And so I would just go out and do repeats of about 200 meters long. And then, eventually, just going out on the road.

I would just kind of push. I especially did not know any training methods. I didn’t know anything about taper or any of the phases or anything of training. And so we would just kind of go out on rides at that point.

VINCE LARA: Had you watched the Paralympic Games, and is that what gave you the idea, oh, I need to do 200’s or whatever training you had done on your own?

DANIEL ROMANCHUK: I would say really it was kind of my mom that, at that time, was sort of guiding training. But yeah, they are one of the very few sports that I actually watched– the Olympic and Paralympic Games. So yeah. I don’t remember when I first watched it, but I do remember Beijing, and Tatyana McFadden, Josh George, and a number of other Paralympic racers, and other sports, as well.

So a number of other athletes had come through the Bennett Blazers sports program. And they had come back. Even after they’re gone off to college or whatever, they would come back every once in a while to kind of just come back– of course, say hi, and then just help the next generation along. And so that’s something I like to do when I can, is to get back and help bring along the next generation.

So I wouldn’t necessarily say when I first saw the games that I wanted to go. I’d probably say I just kind of known about them through other older athletes. And I’ve always been one to just push myself to see how far can I go? How fast can I go? And I think a lot of this just happened at such a young age. I don’t really remember too much of it.

VINCE LARA: OK. Well, you spoke about Tatyana. And you spoke about giving back. So, at this point given your experience in the marathons that you’ve had and the 2016 games, do you feel yourself as a mentor to some of your younger teammates? Because some of them are as young as 19, let’s say Alexa Halko. So what kind of role do you see yourself in now, while you’re competing, but also as one of the more experienced members?

DANIEL ROMANCHUK: I mean I think I’ve been very–

VINCE LARA: Fortunate?

DANIEL ROMANCHUK: Yeah, to have older athletes and mentors that have helped me get to where I am. And so I certainly want to help any athlete and help them just reach their potential.

VINCE LARA: Mm-hmm. Now, you’ve competed in several world majors of the marathon circuit. And does that training help you with the Paralympic Games, or do you consider them really kind of separate?

DANIEL ROMANCHUK: As far as the marathon at the games, that certainly does help. You’ll see a lot of the same racers. Courses of course vary, but I would say it does help with the marathon.

VINCE LARA: You’re also now training for Dubai. Is that a springboard also for 2020?

DANIEL ROMANCHUK: Yep, the last world championships just leading into the games. And so that does have a lot of things to do with the games. Slots can be earned for the country at the World Championships. I believe if you end up in a medal spot, you earn a spot. So it certainly is a big event going into the 2020.

VINCE LARA: Mm-hmm. So now you’ve talked about potentially enrolling at Illinois, maybe 2020, 2021. What do you think comes after sport for you?

DANIEL ROMANCHUK: Certainly like to stay in the sport to whatever degree, as long as I can. One thing I’ve learned in racing and just otherwise is I don’t know what God has planned for me. And so I try not to make a plan too much and to hold too tightly to it. Because I can make a plan for a marathon, and chances are it’s going to fall apart somewhere along the way. So I’m not sure where I’ll end up, but I’d certainly like to stay in the sport.

VINCE LARA: My thanks to Daniel Romanchuk. This has been A Few Minutes With.

Related news

A Few Minutes With … Brian Siemann



Brian Siemann (Photo provided)

2020 Paralympic Games trainee Brian Siemann chats with Vince Lara of the College of Applied Health Sciences at the University of Illinois about how he got involved with racing, coach Adam Bleakney and working at Disability Resources & Educational Services at Illinois.

Transcript

VINCE LARA: Hello. This is Vince Lara at the College of Applied Health Sciences at the University of Illinois. Today I spend a few minutes with Brian Siemann, two-time paralympian who’s training again in Illinois for a spot in the 2020 games in Tokyo. Brian, good to talk to you.

So you’re a graduate of Notre Dame High from New Jersey, the school that also produced Star Jones, famously, among others. And you started taking part in racing when Coach McLaughlin introduced you to it. Did you think that sports wasn’t something you’d ever be able to do to take part in before that?

BRIAN SIEMANN: Oh, yeah, absolutely. Sports to me was kind of this foreign concept that, you know, I didn’t really know of any opportunities that existed nor did I really see any kind of representation of athletes with disabilities competing anywhere. So it’s kind of one of those things that when you’re– when you’re growing up, you just sort of kind of resigned yourself to the fact if you don’t see it, then it’s kind of out of sight, out of mind. And you just look for other opportunities or other sort of interests that, you know, are kind of calling to you. And so when I was asked by coach McLaughlin if I wanted to come out for the racing team, it was very much a shock because sports, again, was something that I had never considered myself doing nor did I really consider myself excelling at it at all. So it was definitely a memorable day, to say the least.

VINCE LARA: Yeah, and how quickly did you come to enjoy the sports part of it? I guess– was it racing that you got into first?

BRIAN SIEMANN: Yeah, yeah. So I got into racing. And so basically, the high school coach McLaughlin had said to me, you know, I’ve never coach an athlete with a disability before. And I was like, oh, cool.

Well, I’ve never done any sports before. And so he was like, we’ll just kind of figure this out together. And so basically, my high school raised money for my first racing chair, which cost about $5,000, which is a huge– looking back on it now is a huge– was a huge sort of gamble that they took and kind of a leap of faith in me just to kind of have me be included on this– on my high school track team.

And then I just started racing. I did the same workouts that all the able-bodied runners did. And so it was just– I was just another member of the team, and I just used a racing chair instead of my legs.

VINCE LARA: Yeah, that’s great. Now you know, being from the east coast, did you know about Illinois’ training facilities, and was coming here about DRES and about the ability for you to continue to train?

BRIAN SIEMANN: Absolutely. But at first, it was not the case. So being from New Jersey and having no exposure to sports, I had created sort of this four year plan for myself where I was going to graduate from high school. And even when I started racing, I had said, like, OK. I’ll do this through high school, like, you know.

But it was never anything that I envisioned happening much later on and, like, continuing to do now for, oh my God, nearly 16 years at this point. And so I definitely did not consider that. But as I started to train, I think around my– like, towards the end of my sophomore and junior year, as you go to these local competitions with other athletes with disabilities, you start to– Illinois is a term that’s frequently mentioned.

And so you start to– you know, again, I never– I was living in New Jersey. I was by the shore, by New York City. The idea of coming out to the Midwest and cornfields was like the last thing I ever wanted to do. But I was actually– I was recruited out here. I came up for a visit I want to say my– like, the beginning of my senior year, I came out for a track camp that the university program runs for younger kids with disabilities.

I came out, and I did like the whole visit. I saw alma mater. And then I went– I trained with all of the other U of I paralympians.

And as soon as I came home, I was like, this is where I want to go. Upon just, like, getting around campus, just seeing just the culture around this entire university towards disability is something that is noticeable right away even for someone who has no exposure to it. And so oddly enough, so I submitted my application. I did– I think it was like the early decision thing or whatever.

And so around that December 1 or whenever that is, I remember I got– I was, like, frantically checking my email. And I was really frustrated because it was– we’re east coast time. And so I had to wait until 6 o’clock and not 5:00, even though it’s, you know, the same thing. but–

VINCE LARA: Right.

BRIAN SIEMANN: My didn’t view it that way. And so I was, like, frantically, like, refreshing my email. And I actually accepted my offer of admission before even telling my parents that I got in.

VINCE LARA: Oh wow.

BRIAN SIEMANN: I remember just telling them, like, oh yeah, I got in and I’m going just because I knew that this was where I belonged.

VINCE LARA: Now you predated Coach Bleakney, correct?

BRIAN SIEMANN: No, he had been here for– I want to say about four years before I started. And so he recruited me.

VINCE LARA: OK. So did you know about him, and was his reputation that wide that even in the East Coast, people knew, oh yeah, you want to go, you know, train with coach?

BRIAN SIEMANN: Oh yeah. So with Adam, it’s really funny. So we kind of have this running joke where once I started to learn about the Illinois program my junior year or so, I mean, even before I came out here, you started to see– like, I learned about the accolades of Adam Bleakney.

It was like I wanted to impress him. And so he would always come to these junior national competitions and everything. And I still remember my conversation with him.

And I always ask him now. I’m like, do you remember, like, where we met and what we talked about? And he’s like, yeah, yeah, of course. And he has no idea. And so it’s kind of this recurring joke between us that he remembers me when I was a kid. And now he’s been stuck with me since 2008.

VINCE LARA: Now you’ve competed twice in the Paralympics. Do your teammates, at this point, come to you for advice? Because you know, there’s a pretty nice gap between you and, let’s say, Alexa or some of the younger members. And is that a role that you enjoy?

BRIAN SIEMANN: Yeah, so I think we have a really welcoming sort of environment. I remember when I was the young kid sort of what that was like to be– you know, we’re kind of really lucky here. We’re surrounded by phenomenal athletes. And so I remember kind of feeling slightly intimidated but just sort of how welcome I was made to feel by the older teammates that I still am friends with to this day. And so it is something that I do take very seriously when new students come in that I try to be that open sort of person that kind of talks to them and kind of lets them kind of learn from some of the mistakes I made maybe. Or just to have someone to talk it was always kind of– is something that I do cherish a lot.

VINCE LARA: Mm-hm. Now you got your masters here. Now you’re working in DRES and student services. So do you allow yourself to think what’s next beyond sport and what your next step would be?

BRIAN SIEMANN: So taking this job as an access specialist at DRES really sort of was kind of what I was thinking as what’s my next step after sports. And so I’m very fortunate in the fact that working at DRES gives me the opportunity to still train and train for 2020 and also still work with students, which is what I love doing. And so that culture, really, I don’t think I can do this anywhere else. And that’s kind of– this is the perfect sort of position for me. But it really did come out of this desire to sort of– and it’s a desire that’s really kind of– it’s a message that’s instilled by Adam because he wants us to look beyond sport as well and then to look towards like having healthy, active lifestyles through sports but also then having something set up after the fact because that’s something that a lot of athletes struggle with if they don’t have some sort of plan in place.

VINCE LARA: My thanks to Brian Siemann. This has been “A Few Minutes With.”

Related news

Podcast: A Few Minutes With … Kevin Richards



Kinesiology and Community Health assistant professor Kevin Richards spends a Few Minutes With AHS media relations specialist Vince Lara and speaks about his pedagogy research and the socialization of teachers, primarily in physical education.

Transcript

VINCE LARA: This is Vince Lara in the College of Applied Health Sciences at the University of Illinois. Today it’s been a few minutes with Kevin Richards, Assistant Professor in the Kinesiology and Community Health Department of AHS, to talk about his pedagogy research and the socialization of teachers.

Kevin, what inspires your research? Let me ask it this way. What led you to do what you do?

KEVIN RICHARDS: Yeah, that’s a good question. It’s interesting because a big thrust of my research is socialization. So, basically, you’re asking me what socialized me into the research that I do. But so I did my undergraduate degree back in Massachusetts in physical education. And I had every intention to go out into schools and to become a K-12 physical education teacher.

But back east, you have to have a master’s degree within five years to keep teaching in schools. And so a lot of people did like the night– the night school thing, and that just wasn’t for me. So I decided that I was going to look at graduate programs so I could just knock out that master’s degree in one shot, and then focus on teaching after. And that led me out to Purdue University, where I did my master’s and built the relationship with my advisor, Tom Templin.

And Tom studied socialization. And he was one of kind of the forefathers of that area of research in physical education. And I just got really passionate about that area of research through talking with him. So, you know, the main thrust of my research through the work that I did on my PhD and then, you know, and the majority of my career since focuses on how we recruit, prepare– recruit and prepare teacher– individuals to go into the field of physical education.

And then once they’re out in the schools, what are their lives and careers like? Physical education tends to be a marginalized subject in a lot of schools. And so I do a lot of work looking at marginality and how that affects teachers’ understanding of themselves and their relationships with others.

VINCE LARA: So, basically, to streamline what you’re saying is, you’re trying to build the best teacher you can, is that fair to say?

KEVIN RICHARDS: Yes, in a sense. You know, we look to recruit people into our programs who are diverse in terms of things like traditional markers like race and ethnicity. But then also in terms of their background experiences. Physical education’s been traditionally a discipline that potential recruits really see to align with coaching.

So those who want to coach extra curricular school sports sometimes come into physical education with these really solid, developed backgrounds in team sport. And they see physical education as kind of a conduit to continue that. But not every kid who is out taking physical education in schools loves sports. So we try to recruit more diverse students.

But then also looking at the methods that we use in our physical education programs to give those students the knowledge and skills that they’re going to need in order to become effective practitioners into the future. But, also, you know, we focus a lot on dispositions, because, you know, while they’re in our classes, we can hold them accountable. So we can grade them. If they don’t do what we tell them to do, you know, we can fail them even.

But the reality is that once our students transition out of our programs out into schools, we lose that control. And so at that point the true marker is, you know, have they internalized these beliefs to the extent that they’re going to use them even when we’re not watching. And so, we really try to work with students to help them develop ideologies that align with best practice, but are grounded in their own experience, and that they’ll follow through on.

VINCE LARA: What are some of the challenges, you know, physical education teachers– there’s some stigma around that, right? So what are some of the challenges of getting kids into the program? And what do you do to try to, you know, defeat some of those stigmas, if you will?

KEVIN RICHARDS: Yeah, yeah. That’s– it’s a really good question. And it’s timely, because this has actually been one particular area that I’ve been focusing on quite a bit in my work right now. But, you know, there are a lot of those negative social stigmas. And some of them, you know, are grounded in fact. You know, unfortunately, there are some physical education teachers, especially at the secondary level, the middle school and high school, who teach using ineffective practices.

The colloquialism in our field is that they roll out the ball. So they just kind of throw a ball out and let the kids play. It’s not educational. It’s not purposeful. And I think that sometimes people think about physical education and they reflect upon their own past experiences or maybe what their kids are going through in school, and they use that as the marker to evaluate the whole discipline. But, you know, of course, physical education can and should do so much more than that.

And so we really try to work with, you know, on the pre-service teacher side of it, develop teachers that are ready to step out into the world of schools, and teach using effective practices. And then a lot of my work has then also looked at those teachers who are in-service, working out in the schools, and how can we help to improve their work conditions and reshape their ideologies so that they’re using best practice. And then you have kind of this streamlined approach in the ideal situation where pre-service teachers are stepping out into schools that are ready to embrace the practices that they’ve learned.

And then, you know, this is all kind of a cyclical process, because the next generation of teachers are going to come out of those schools, and they’re going to see physical education as it’s presented to them by their own teachers, and use that as the basis for evaluation to determine whether or not they think physical education is for them. And so if we can get better physical education in the schools, then we’ll have better recruits coming into our programs.

VINCE LARA: One segment of your research, I noticed, deals with helping teachers deal with stress.

KEVIN RICHARDS: Yeah.

VINCE LARA: So what methods do you use to research that?

KEVIN RICHARDS: Yeah, yeah. So I was initially trained as a qualitative researcher. My advisor, Dr. Templin, was very qualitative. I joke, in that, I don’t think he’s ever, like, calculated a mean in his career, like it just wasn’t his bag. Now I’m exaggerating, he has. But he’s very qualitative. So that’s how I was originally trained.

But then I did a postdoc at Purdue with a woman named Chantal Levesque-Bristol. And she was a cognitive psychologist that used primarily quantitative methods. So I kind of got a mix of both, and have really come to appreciate mixed methods and multiple methods working together. A lot of my studies are designed using sequential approaches.

So we might do a large scale survey of teachers, you know, and get hundreds of responses, asking them questions about stress and burnout, and, you know, protective factors like resilience and perceived mattering. And then we’ll take a sub sample of people who complete that survey, and then do qualitative interviews with them.

But what I’m really excited about is we’re taking all of this information that we’ve learned over the last few years studying teacher stress, and we’re putting it into practice. We got some funding through a small seed grant to develop a professional development program for teachers in local Champaign-Urbana area.

We’re calling it the Dream Project. That’s developing resilience and enhancing appraisals of mattering. And it’s kind of the culmination of the last six years of my career learning about stress and burnout in the relationships among these variables, and how teachers experience their work life, and then putting that to practice to try to do something about it.

VINCE LARA: You also look at social and emotional learning in physical education. Would you elaborate a little bit on that?

KEVIN RICHARDS: Yeah, yeah. So that’s kind of a sub area or a second, maybe not sub area, but it’s kind of like a second tree of my research. So I had a colleague when I was going through grad school together– grad school named Michael Hemphill. And Michael and I– or Michael was very interested in social and emotional learning using this one particular best practice model called teaching personal and social responsibility.

And so TPSR, as we call it, is a way to teach within a physical activity context that views physical activity as kind of a mediator or a vehicle to get kids talking about personal and social responsibility. So there you have that hook of physical activity that a lot of kids like. It draws them in. And then that opens the door to say, OK, well, yeah, we’re going to focus on skill development. We’re going to focus on activity. But we’re also going to help you learn to be better people.

And so we focus on goals like participation and showing good effort, respecting the rights and feelings of others, self direction, and some goal setting, leadership and helping other people. And then the ultimate goal of all of that is to take lessons learned in the gym and transfer that out into other aspects of your life. So you know, you learn about respect in a physical activity program where you can use that in school.

Before I came to the University of Alabama, I was at– or excuse me, before I came to the University of Illinois, I was at the University of Alabama. And while I was there, a doctoral student and I, Tori Ivey, we ran a after-school program that focused on social emotional learning through physical activity over the course of three years, and learned a ton about best practices and best ways to do that.

And so then moving up here to Illinois, myself, Naiman Kahn, who’s another faculty in KCH, and my wife, Felicia Richards, who’s an instructor in our department, have been collaborating to take a summer program that our department’s actually offered for like 60 years. It’s one of the longest running summer programs, physical activity summer programs in the country. It used to be called Sport Fitness.

And so we took that and made some modifications to the structure, and rolled out a revised version of the model that we’re now calling IPAL. So it’s Illinois Physical Activity and Life Skills is what we are calling the program now. And that– that’s kind of a framework that we’re going to use this summer to roll out a couple of different summer program offerings using physical activity as kind of the hook, but really trying to get at those social emotional learning goals.

VINCE LARA: Is that program one of the reasons why you chose Illinois?

KEVIN RICHARDS: You know, I chose Illinois for a lot of reasons. I really like the people I worked with at Alabama, had great relationships down there. But Kim Graber and Amy Woods who are in pedagogy area with me, they’re leading scholars in the field. And Kim was actually on my dissertation committee. So we have this relationship that goes back a ways. And then, you know, Amy and I have collaborated over the years, too.

So those pre-existing relationships are a big part of what drew me here. But then, you know, or at least piqued my interest. But then after having come onto campus and see everything that Illinois has to offer, I mean this is a magical place. I really love it here. And, you know, my wife and I couldn’t be happier with the decision we made.

VINCE LARA: Now research obviously is a big part of why you’re at Illinois and our institution, obviously. But you know you also have to teach.

KEVIN RICHARDS: Yeah, yeah.

VINCE LARA: So do you– is there a particular class that you enjoy more than others?

KEVIN RICHARDS: Yeah, yeah. And people who listen to this might find this a bit surprising. But I love teaching actually. You know, it’s a huge part of my identity. I look forward to it. It’s not a burden. I love interacting with students. And the way that my teaching appointment is split here is that I teach one physical education majors course, so I still have my connection with the PE majors.

I teach a rotating course for our doctoral students. And then actually my favorite course is– it’s KIN201, Physical Activity Research Methods. And when the course got turned over to me, Neha Gothe and I actually collaborate on it. I teach it fall, she teaches in the spring. And when the course got turned over to us, you know, I think that it was a good idea, but it needed some fleshing out and development. And it’s been really fun to do that over the last couple of years with Neha.

And, you know, we’ve got the course to a position now, where the feedback that we’re getting at least, is that the students really enjoy it. We use kind of a lecture lab format. So they– you know, a large group lecture, where we can kind of talk about these concepts. But then the students break out into lab groups, where they get more kind of intimate contact and attention.

And, you know, I love talking about research. And so sparking that interest in the minds of our undergraduates, I think is a really cool part of our job. And so, I just got an email the other day actually from a student who was able to take something that we talked about in class a few weeks ago, and apply it in her life, reading a research article, and she wrote to me to tell me about that, which I thought was really cool and that really speaks to what I hope students get out of this class.

VINCE LARA: My thanks to Kevin Richards. This has been A Few Minutes.

Related news

Podcast: A Few Minutes With … Naiman Khan



Kinesiology and Community Health assistant professor Naiman Khan speaks with AHS media relations specialist Vince Lara about his research on the impact of diet on cognitive health.

Transcript

VINCE LARA: This is Vince Lara in the College of Applied Health Sciences at the University of Illinois. Today, I spend a few minutes with Naiman Khan, an assistant professor in the Kinesiology and Community Health Department, to talk about his research in the disciplines of dietetics, body composition, and cognitive neuroscience.

NAIMAN KHAN: First of all, thank you for having me. It’s a real pleasure to speak with you today. When I actually started doing, starting my training, I was interested in practicing first. So I was interested in becoming a registered dietitian and working in the field– so focusing on clinical nutrition.

And all the way through my master’s degree, that was the plan. So I did my master’s in nutrition. And then, I did a dietetic internship, which is the clinical training. And during that time, I realized that I really enjoyed the research on campus. And after I received my dietetic credential, I returned to do my doctorate– and then, focused on research.

And but that– you know, my training in dietetics was still very useful in sort of shaping the questions and my approach for my research agenda. So it’s still very beneficial. But that was a point at which I decided to pursue research.

And, of course, there are different ways to do research and different types of institutions. I really enjoyed teaching. And especially during my graduate training– I was working with different schools and teachers across the state of Illinois. And I really enjoyed the education component of my research. So I wanted to work at a place like the University of Illinois that gives an opportunity to do both research and nutrition.

VINCE LARA: Now, you mentioned nutritional neuroscience is what your research focuses on. And what led you to study that?

NAIMAN KHAN: Well, that fascination of, sort of, merging those two disciplines started when I was a graduate student. I had a assistantship in the University of Illinois Extension program. And my job involved really working with teachers and children in elementary schools that had at least 50% of the population receiving free or reduced school lunch. And we were focused, of course, on that. In that study were focused on nutrition education.

But I spent a lot of time in schools. And it really got me thinking about academic achievement and cognitive health markers in children and whether our nutrition could be used as a way to meet that health gap that we know exists in many different communities.

We know that there are some implications of– some households, some schools do better than others. And we know there’s some variability in how well children do in school performance. And I just wondered if nutrition could be something we could leverage to do that.

And that fascination led into a postdoctoral position with Chuck Hillman, who was a– Dr. Hillman, here at the University of Illinois, was doing work in pediatric exercise neuroscience. And that was where I received my neuroscience trainings working under him.

VINCE LARA: So you focused on diet and physical activity as well as the link to obesity and cognition. So I think, traditionally, people might see the brain and the heart as separate– but what did you find when you looked at the interactions of those things?

NAIMAN KHAN: Yeah, so the philosophy sort of varies depending on which scientist you speak to. Traditionally, yes, people have studied the brain separately from physical health– so cognitive health has been separate from physical health. But the reality is that they’re co-dependent. We have evolved as a species to mature.

For example, from a developmental standpoint, cognitive development is in synchrony with physical development. And they really inform each other. And it turns out, if you look at the data, the epidemiological data, in particular, all the markers that affect cardiovascular health, chronic disease, those things– for example, sedentary behavior, and even poor physical activity patterns, poor diet, elevation in blood markers that increase risk for heart disease– these same factors are also predictive of cognitive health in individuals. And we see that quite a bit in the older adult literature.

And what we’ve been interested in examining is really– when does that start? When do we start seeing that link between behavioral patterns and these health factors that we know are important for living a healthy life? When does that– they start actually having an impact on cognitive measures?

And so far, we have been able to demonstrate this in young adults. We’ve shown it in preadolescent children and even in younger kids now. So we’re doing some work in four and five-year-olds where we’re seeing some very similar patterns. So it would be consistent with the hypothesis that health behaviors like healthy nutrition and physical activity, and of course, maintaining a healthy growth status, a healthy body weight– these factors seem to be important for cognitive health even in early childhood.

VINCE LARA: You recently did a study that got some really good publicity on the link between children’s cognitive processes and water. So what led you to study that?

NAIMAN KHAN: Really, what inspired that is that—our laboratory is interested in looking at diet quality. So at least, I don’t think that there’s only one way to eat healthy. And there are multiple aspects of our diet that we used or leveraged to even do that for a healthier lifestyle.

And we know that water is a marker of high diet quality. And that’s been demonstrated. Most of the foods that are higher in water tend to be fruits and vegetables and water consumption. Hydration is vital. Adequate hydration is vital for survival. And that’s been known for a long time.

So we were interested in– previous work in our lab had looked at dietary fiber. We had looked at dietary consumption of cholesterol and some fatty acids. And another marker of diet quality is also water consumption. And so that’s what led to that study.

And then, we also realized that in the literature, there’s very little known about hydration in children and its implications for cognitive health. What’s alarming, really, is that recent epidemiological data even suggests that majority of children in virtually most countries, but even in the United States, specifically, are chronically in a state of hypohydration, where then, we don’t think they’re adequately hydrated, based on some really good markers in urine.

So we thought it would be important to determine whether this chronic state of hypohydration has implications for cognitive health. And if we did provide children with more water to drink and modulated water intake– to determine whether that would actually affect certain aspects of cognition.

VINCE LARA: Did you find or have you found that it’s a lack of understanding the importance of water? Or is it a lack of access to water?

NAIMAN KHAN: So it’s a combination of both. And when it comes to kids and children, the challenge is that they’re more likely to have involuntary dehydration. But they depend on adults for much of their food intake. It’s the same thing with beverages and water.

So unless adults are paying attention to making sure that kids have access to water– it’s being provided to them, it’s likely that children also then have increased risk for dehydration. And that’s a awareness that we just need to have in our communities and in families and schools to make sure children are having access to water.

And then, the other aspect of it is also the research gaps. As scientists in the area of behavioral sciences, we haven’t really done a lot of work with water. Even though it’s such a vital and essential nutrient to survival, it is often taken for granted. And we really haven’t figured out or conducted randomized controls for trials to really determine what is the adequate amount of water necessary to really be healthy in all the different domains of health.

The current recommendations are really just based on, sort of, population patterns of what we think is adequate. But really, we don’t know how much water should be consumed for particular outcomes of health. So in that regard, it’s really a challenge of both sides– it’s awareness, access. And also just– so as far as a research priority, it’s just not been something that we’ve really done a good job at.

VINCE LARA: Now, we’re conducting this interview in your lab. And you can see– your lab was buzzing out there. So what kind of things are you working on that are upcoming that you’re excited to talk about?

NAIMAN KHAN: Well, we have a lifespan approach in the laboratory. So we’re conducting studies in– from four and five-year-olds all the way to older adults. And as I mentioned earlier, there are many ways of living healthy. And if you just look at diet alone, there are many factors of diet that could contribute to cognitive health. And the same thing could go with physical activity and fitness as well. There are multiple components of activity that could be predictive of cognitive health.

So the work that we’re doing in the laboratory is multidisciplinary. And that’s really exciting for us. We like to merge that knowledge in and across disciplines. So it’s hard to pick a particular area that I’m really excited about because it’s all very exciting to me. I have a lot of different interests.

But I can tell you about some of the recent studies we’re doing. Some of them focusing on younger children– so four and five-year-olds. We are interested in determining whether the factors that we have shown are predictive in early adolescence– so true also in younger age in terms of diet quality, aerobic fitness, and the effect on cognitive health.

We’re excited about that area of research. There isn’t a lot known in that area. And then, on the other end of the spectrum, we’re focusing in the area of multiple sclerosis and trying to understand how a diet can impact some of the symptomology and quality of life in multiple sclerosis– which we’re excited about because there’s some potential to really have an impact on people’s lives.

VINCE LARA: My thanks to Naiman Khan. This has been A Few Minutes With.

Related news

Podcast: A Few Minutes With … Clarion Mendes



AHS media relations specialist Vince Lara speaks with clinical assistant professor Clarion Mendes about her speech pathology work and work with helping transgendered individuals find their voice.

Transcript

VINCE LARA: This is Vince Lara in the College of Applied Health Sciences at the University of Illinois. Today, I spend a few minutes with Clarion Mendes of the Speech and Hearing Science Department to talk about speech pathology, alternative communication, and helping transgender individuals find their voice.

Clarion, thanks for meeting with me today. I really appreciate it. I wanted to ask you– I commonly ask this question– did you always want to teach?

CLARION MENDES: So no. And I think that’s one thing that’s really fascinating and exciting about the fields of audiology and speech language pathology. When I went into graduate school, I initially started graduate school in a different field, and then I transitioned into speech and hearing science.

And what’s phenomenal about it is, if you approach the fields of audiology and speech pathology with an open mind, with a curious mind, you’ll never know what you might discover as far as what your strengths are. So if you had asked me 10 years ago when I graduated, would I end up teaching at a large research university, I’d probably say no way. But it’s been a really fantastic journey.

VINCE LARA: Yeah, so speaking about your research, what led you to do what you do? Was there something– some inspiration in your life that made you decide on this kind of field?

CLARION MENDES: So I have always been fascinated by the prospect of language. And as I was studying the fields of linguistics and psychology, I realized that I had a deep fascination with the idea of what can happen when a system that was previously entirely intact has had some degradation from some sort of neurological event or some other situation. And so I switched in to speech and hearing science and became a speech language pathologist.

And I started out working with the geriatric population in skilled nursing facilities as well as acute care. So that’s kind of how I fell into this field. Yeah.

VINCE LARA: Yeah, interesting. Well, I know the geriatric population is your favorite population of people to work with, and I wonder, why?

CLARION MENDES: I think the geriatric population has the best stories. So when you have lived that long of a life– and it’s also my grandmother’s 89th birthday today–

VINCE LARA: Oh, wow.

CLARION MENDES: –so happy birthday, Grandma.

VINCE LARA: Yeah. [CHUCKLES]

CLARION MENDES: They have the most rich life experiences. And so it’s so rewarding to be able to give back to individuals that have given so much of their lives to their hobbies, and their interests, and their vocations. So it’s great.

VINCE LARA: That’s fantastic. So I wonder, today’s era of communication is all about text, and it’s all about non-speech communication. Does that help someone who has a speech difficulty communicate?

CLARION MENDES: Well, if we look at the idea that pretty much everybody uses communication in multiple modalities– so we’re not just robots who are producing information that we process in our brain, right? We are using communication in so many different ways, whether it’s texting, email, body language, dress, so on and so forth. So I think we probably should look at it not just as something that helps individuals that might have a communication disorder, but we all benefit from having multiple different options to communicate, not just speech.

VINCE LARA: Because it makes the message easier to convey?

CLARION MENDES: Sometimes, yes. Sometimes it might make it more complex, right? You can think of the situation where you sent a text message and then regretted it shortly thereafter, realizing, oh it didn’t convey the right tone or it didn’t convey the right message that I was looking for. So just like any tool– if we look at communication as a tool– it can be used for good or not so good.

VINCE LARA: That is true. Now, you’ve been involved in helping transgendered people find their voice. Very popular research that you’ve undertaken. Now, how does that process work? And to you, why is it important?

CLARION MENDES: So it’s been very, very rewarding. And I will say that since I started working with this population about four years ago, the vocabulary and the terminology has changed, and the culture has changed quite a bit. So I’m just going to say that we don’t say transgendered people, we say transgender individuals.

VINCE LARA: OK.

CLARION MENDES: So I stumbled upon working with this community about four years ago, and it was completely by accident. So, like, a lot of, like I mentioned earlier, having a curiosity and an eagerness to learn has just been super rewarding in this field, and is one of the reasons why I love being in speech path. So about four years ago, a young woman had reached out to somebody– a couple of people my department– my department head as well as the professor who was here at the time, tenure track working with voice. And she had mentioned that she wanted to work on voice feminization because her gender identity was female, and it was causing a lot of distress that she had this masculine-sounding voice.

And so my department head and my colleague said, why don’t you speak with Clarion? She’d probably be a good fit for you as far as this kind of treatment is concerned. And I met with this young woman and I was completely honest with her. I said, I’ve not worked with this population before. I said, once I heard from you I started digging into the research a little bit to see what’s out there. And I said I’m open-minded, but it’s going to be a learning journey for us together.

And she’s like, that sounds good. Let’s do it. And it was a great experience. Made a tremendous positive impact in her life. And since then, I’ve pursued additional education, done a lot of readings. I have to pull– because it’s a relatively new field of study– when I’m working with individuals, I have to pull from research in lots of different fields. So possibly acoustics– I’ve looked into the forensic linguistics literature, and linguistics in general. And so since then, I’ve just had a big increase in caseload from word of mouth, from different health care practitioners in the community.

VINCE LARA: Locally, or have you extended beyond that?

CLARION MENDES: Locally, although I do hear– I do get people from all over the state. So for instance, Lurie in Chicago has reached out to me for resources as well as some places in Wisconsin, and just around the state because it’s a relatively rare specialty.

VINCE LARA: Can you talk a little bit about how you go about changing someone’s voice?

CLARION MENDES: Yeah, absolutely.

VINCE LARA: Oh, great.

CLARION MENDES: So I think a lot of people, when they think of voice feminization, immediately their brain goes to, let’s increase the pitch. But if we think about when an individual is speaking in a falsetto, it doesn’t sound particularly feminine, right? It just sounds like a male speaking with a really high squeaky voice. So while there is a baseline pitch that a person needs to achieve in order to be perceived as having a feminine voice, there’s a lot of other factors involved.

So I focus a lot on resonance, which is kind of a tricky term, right? Sort of difficult to define, it’s difficult to train. But some of the things that I’m looking for when we’re training residents is, how do we modify our articulators? So for instance, our lips and our tongue, to make the oral cavity, the mouth, present sound with a more feminine manner?

So some of the ways we do that is, if we sort of move the position of the tongue to be more forward in the mouth, it’s going to sound more feminine than if we were to retract the tongue to the back of the mouth. So things like that– playing with the articulators, playing with inflection, helping to better connect breath support with foundation– these are all things that can help shape the voice. But it’s a process. And it’s a lot of work for the folks that choose to pursue this, but it generally is very rewarding for them as well.

VINCE LARA: I imagine so. Do you ever look at the person who is asking for this kind of help and try to fit the right voice with them by doing that? Or is it something they say to you, I’m trying to sound like this? I mean, how does that process work?

CLARION MENDES: That’s such a great question. So something that’s super important– and I’m so glad that you brought that up– is I’m their guide. It’s not my job to tell them exactly what they’re supposed to sound like. Everybody’s goals are going to be different. But it might be my job to help shape expectations to be realistic.

So we can do amazing things transforming the voice and communication. But if somebody has a very deep bassy voice, probably not going to make them a soprano. However, what we can do is make a voice that helps them feel like themselves, express themselves in the identity that they truly are.

VINCE LARA: Mm-hmm. Well, as a clinical professor, then, you have a course load. Are there courses that are your favorites? I know it’s like asking who your favorite child is, right?

CLARION MENDES: Yeah, right, right right. So I primarily have taught the motor speech disorders class. And so I’ll be teaching that again in the summer. I am excited, though, because coming up in the spring, I teach a medical methods in speech language pathology class.

And what I love about that is, that is helping students prepare for the final step before they actually get their master’s degree in speech language pathology. So at our institution, the last 10 weeks of their graduate career they’re in a full time medical externship. And that’s really exciting because in that opportunity they get to work with patients full-time and get to show what they know– show what they’ve acquired and learned during their experience here.

And so the medical methods and speech language pathology class prepares them so that they can take all of the coursework and all of the clinical work and be able to apply it to patients directly.

VINCE LARA: My thanks to Clarion Mendes. This has been A Few Minutes With.

Related news

Podcast: A Few Minutes With Kim Shinew, Monika Stodolska and Liza Berdychevsky



In this new podcast, Recreation, Sport and Tourism Department faculty Kim Shinew, Monika Stodolska and Liza Berdychevsky discuss their study and findings on youth gang involvement and recreation programs.

Transcript

VINCE LARA: This is Vince Lara in the communications department of the College of Applied Health Sciences at the University of Illinois. Recently, Kim Shinew, Monica Stodolska and Liza Berdychevsky, all of the recreation, sport, and tourism department, discussed their research on how recreation programs can be effective in addressing youth gang involvement and violence.

KIM SHINEW: My name is Kim Shinew, and I’m a faculty member in the department of recreation, sport, and tourism, in the College of Applied Health Sciences. And I’m here with my two colleagues.

MONIKA STODOLSKA: Monika Stodolska– I’m also the faculty of the department of recreation, sport, and tourism. And I work with Kim for almost 20 years.

LIZA BERDYCHEVSKY: My name is Liza Berdychevsky. I’m also a faculty of the department of recreation, sport, and tourism. And we’ve been working together on this project for several years now.

KIM SHINEW: Well, we’re here today to talk about a study that we did up in Chicago. The study started many years ago in a project that Monica and I did as it relates to youth in Chicago and their access to recreation and sport programs. When Liza joined us, she had an interest in gang activities. And that coincided very nicely with research findings that we had had in previous studies. And so we wanted to conduct a study that focused more specifically on the gang experience and their motivations for joining gangs and their experiences once they left gangs.

MONIKA STODOLSKA: Some of our research topics were the factors that affect people’s use of outdoor recreation spaces, specifically Latina youth. And we conducted focus groups. And some of the things that people talked about over and over again was how crime affects people’s ability to use public spaces and recreation resources. And that’s how it all started.

LIZA BERDYCHEVSKY: And then in this particular study, which was funded by the campus research board grant, we have focused on the roles and benefits of using recreation in the prevention, intervention, and rehabilitation programs targeting youth involved in gangs. Recreation is a tool that can be used on many levels in the prevention, intervention, and rehabilitation efforts for vulnerable youth who are involved in gang violence. Now, not every recreation effort would necessarily work.

There are key features that we have to deliver to those recreation programs. They have to be consistent. They have to be affordable.

They have to be attractive to youth. They have to offer structure and supervision. And they have to target high risk youth appropriately.

And then if we are successful with that, we can deliver pro-social relationships, positive role models. We can deliver capacity for transformation and reappraisal. And we can also offer safe havens to vulnerable youth, which is extremely important.

One of the programs that was particularly instrumental in our society and helped us a lot, both with recruitment and data collection and even understanding the results that we’re getting, is Cure Violence, formally known as Ceasefire. They’re actually an intervention program. They employ former gang members who act as violence interrupters and mentors and coaches who work with high risk youths who are already involved in gangs and gang violence.

So many of the features that we are discussing were successfully implemented in their programming efforts. They were using recreation both as a hook to entice people to join their programs, but they were also using it as much more than that to helping them open up, grieve over things that happened, connect to each other, communicate better to each other, connect to positive role models, and even things like learning how to be a father because some of them– not all of them.

Some of him never had a fatherly role model. So they use recreation in various roles. And many of our findings are linking well to that example.

KIM SHINEW: And I would just like to add to what Liza said about Ceasefire. They were instrumental in the success of this study. As you might imagine, it is difficult to find former gang members that want to sit down and talk to you about a research study.

And we reached out to Ceasefire, and they reached out to their group, their members, and asked them if they would participate in this study. So when we would go up to Chicago, they coordinated the interviews. And we would sit in this room with them, and we would interview someone. And then we would walk out, and we would say next.

And the next person would come in. So in terms of data collection, it was a dream because of their willingness to help us. And when we asked them about their willingness to help us, they felt that our studies, goals, aligned with the goals of their project. And that’s why they wanted to assist us with recruiting people for the study.MONIKA STODOLSKA: It was actually interesting because some of the older gang members who, you know, deceased from the activity decades ago, they mentioned that gangs in the 1960s and ’70s and ’80s, there were action organization that provided recreation opportunities to youth. They were the ones who set up the soup kitchens in the neighborhoods. They are the ones who took kids to Six Flags, and they actually provided recreation opportunities for the kids. And now they comment that is no longer the case.

It’s more everybody’s, you know, on their own, and they’re focused more on obtaining money from drug sales than caring for the community. Obviously, this was the more of a romanticized notion of gangs, what happened 20, 30, 40 years ago. But they were sort of disillusion about the landscape of crime that is happening in Chicago and major urban areas right now. And it’s more difficult to police them as well.

KIM SHINEW: Monika mentioned something that I just thought of when she was talking about the type of individual that is attracted to gangs. I mean, sometimes, it’s been a family tradition, and they just, it’s what they know. Other times, it’s youth looking for thrills, right, and the risk associated with being a member of the gang. And I believe that this is another place where recreation and sport programs could play a role because if they can find other avenues to get that thrill and that excitement that comes with a gang, then that might be a good alternative to joining a gang.

MONIKA STODOLSKA: Absolutely, and the role models. For many of the youth, they mentioned that they’ve never had a real family. They never had someone they could depend on and someone who would actually care for them. And this is what they are looking for in gang affiliation. So the recreation practitioners whom we spoke with, they mentioned that a recreation professional, a coach, can be the mentor, can be this important person that can actually change the life of a child.

KIM SHINEW: The other thing we learned doing that study when we were interviewing middle school students is how early the recruitment for gangs started. It was much earlier than what we had anticipated and that it was happening in late elementary school, early middle school when they were being approached and asked to join gangs. We need to be on the lookout for gang activity in elementary schools and that that’s where a lot of the recruitment happens. I remember interviewing someone who said that by the time they get to high school, they’ve already decided, right?

They’re either in or they’re out. But it’s that late elementary school where they’re making that decision and then into middle school. So I think by the time you get to high school and you think about programs to prevent gang involvement at high school, that’s too late. And so it really needs to be much earlier.

LIZA BERDYCHEVSKY: And I think it also refers to what kind of programs would be offered to those different age brackets because if we’re talking about primary and middle school, we should be focusing on primary prevention efforts– so focusing on broader youth. And then when we are offering programs that are targeting high school age kids, at that point, since, like Kim said, the decision for most of them has been made already, maybe offering intervention programs that are more tailored towards high risk groups who are already involved in gangs– so different efforts and using recreation differently in those efforts.

MONIKA STODOLSKA: Our study had a lot of interesting findings, and some of the things that really struck us was that gangs have evolved in recent decades, and they have become much less organized, much less structured, more violent. There is much less cohesion among gang members and less loyalty. And what happens is that they’re mostly focused right now on earning money from drug sale.

What we are also seeing increasingly is the influence of Mexican drug cartels, especially the Sinaloa cartel in Chicago. And that really affects the landscape of violence in the city. So one of the things that we need to learn from future research is how to protect you from that new violence that is happening in our urban areas.

Another thing that was really interesting in our study that we discovered is that gangs operate not only in those impoverished central city communities– gangs are present in every city, in every neighborhood, even in small communities like Champagne Urbana. They attract youth not only from working class families but also from middle class families. So youth of all kinds of backgrounds are exposed to gang activity. So what we need to learn more in future research is what are the protective factors, what are the personal characteristics of youth that makes some kids more resilient to crime than others, and how communities and how families can use recreation to protect their children from crime and violence.

KIM SHINEW: Some of the areas that we haven’t talked about today that was certainly evident in our findings was a difference between males and females and their gang experience. And I think that is also a fertile area of research just as it relates to sexuality and risk-taking. And that’s an area that Liza has done quite a bit of work in.

LIZA BERDYCHEVSKY: Mm-hm, that’s one of the papers that we are currently writing up gangs have an extreme chauvinist culture. It’s like taking double standards that we still unfortunately have in the society and magnifying the amplitude of their influence on what roles are available to men and what roles are available to woman, what different kinds of victimization female and male gang members are being subjected to. And unfortunately, a gang is a horrible place for everybody but even more so for young women.

KIM SHINEW: What we feel is that we need to be at the table when these different intervention and rehabilitation programs are being developed because if those key qualities are not there, they will not be successful. So practitioners who are working for YMCAs and park districts and public schools and Boys and Girls Clubs can play a really pivotal role. But they need to be included at the initial stages to ensure that the programs are set up in a way that allows them to be successful.

So recreation in sports is not a panacea. It’s not an automatic that they will have a positive impact. But I think our findings highlight very well the potentially positive impact that they can have.

VINCE LARA: My thanks to Monica, Liza, and Kim. This has been A Few Minutes With.

Share on social

Related news

Podcast: A Few Minutes With … Marie Moore Channell



AHS media relations specialist Vince Lara speaks with Dr. Marie Moore Channell of the Speech and Hearing Science department to discuss her research on how language and communication skills develop in children with Down Syndrome and her plan to increase awareness of autism spectrum disorder in individuals with Down Syndrome.

Transcript

VINCE LARA: Hi, and welcome to another edition of A Few Minutes With, the podcast that showcases Illinois’ College of Applied Health Sciences. I’m Vince Lara, and today I’ll speak to Dr. Marie Moore Channell of the Speech and Hearing Science Department, who talks about her research on how language and communication skills develop in children with Down syndrome and her plans to increase awareness of autism spectrum disorder in individuals with Down syndrome.

All right, Dr. Channell, thank you for joining me on this edition of A Few Minutes With. And I typically ask all the guests on the show what led you to Illinois. So what led you here?

DR. MARIE MOORE CHANNELL: OK. Thanks for having me.

VINCE LARA: Sure.

DR. MARIE MOORE CHANNELL: Well, the goal of my research is to have a positive impact on the lives of individuals with disabilities. So for me the University of Illinois was a natural fit. This university and our College of Applied Health Sciences in particular has really paved the way for innovative strategies for supporting individuals with disabilities. So that was one reason.

And then, also within our department of speech and hearing science, the department is consistently one of the top speech language pathology programs in the country. So it has a great reputation. But also, the interdisciplinary approach to understanding and working with people with communication disorders, I thought that was really important. Because I think that our fields, our sort of subfields of expertise, really need to think about how we can work together to collectively have a stronger impact on the lives of people with disabilities.

VINCE LARA: Speaking of your research, typically there’s something in a researcher’s past that leads them– some sort of inspiration that led you to study what you study. What was it for you?

DR. MARIE MOORE CHANNELL: Oh, yes. For me, it was my brother. So my brother has a rare genetic disorder that causes intellectual disability. It’s not Down syndrome, but kind of like that, in that it causes intellectual disability and causes challenges with communicating. And so I think growing up with him and his peers really made me aware of the needs of individuals with different kinds of disabilities and their families. And so I knew I wanted to make a positive impact on their lives. And that’s really what led me to this field.

VINCE LARA: Now, when you started out, did you think about research first or teaching? Did you say to yourself, I want to be a teacher? Like, was there something about that profession?

DR. MARIE MOORE CHANNELL: I really didn’t think specifically about teaching or even research. I was really focused on the population that I wanted to work with.

VINCE LARA: OK.

DR. MARIE MOORE CHANNELL: And I was able to, as an undergraduate student, get involved in a research lab. And that’s where I realized that I liked research, and that I was good at it, and wanted to do it. And so, I realized that research was a way for me to help this population of children with disabilities. And I also got some teaching experience in graduate school and realized how much I really also like to shape the lives of students and future professionals and that teaching is a great avenue for that

VINCE LARA: Where’d you do your undergrad work and your grad work?

DR. MARIE MOORE CHANNELL: Oh, both actually at the University of Alabama.

VINCE LARA: Oh, OK. Great. Well, you mentioned that your research does focus primarily on development of language and other skills for people with Down syndrome, and you talked about your brother. One of your goals is to raise awareness of the autism spectrum disorder for people with Down syndrome. How do you propose to do that?

DR. MARIE MOORE CHANNELL: That’s a great question. So I think we can learn a lot from the greater autism community. So I think, as a whole, the autism community over the past several years has done a great job of advocating for the needs of individuals with autism and also for really raising public awareness of what autism looks like, some early signs and symptoms, so that people who may require more support can get services earlier and sort of the importance of early intervention. I think we can take that sort of as a model for what we need in Down syndrome.

What I think is a challenge in Down syndrome is that it carries this stereotype of people with Down syndrome are so social, and friendly, and always happy, and while certainly there are a lot of positive attributes to people with Down syndrome, I think that, just like all of us, people with Down syndrome have a range of emotions and a range of ability levels. And so they can also have autism. And so I think that’s going to be the challenge in sort of raising awareness and thinking about even understanding that someone with Down syndrome can have autism also.

And actually, the current research evidence suggests that autism is about at least five times more likely in someone with Down syndrome than in the general population.

VINCE LARA: That’s interesting. And you’ve said now, for individuals with Down syndrome, failing to provide early intervention for the autism spectrum disorder can have long-term consequences. I’m wondering what those would be.

DR. MARIE MOORE CHANNELL: Well, of course I’m going to say a lot more research is needed, but I would say that the current evidence points toward more cognitive difficulties, less developed language skills, and fewer adaptive skills, which is sort of skills that are needed to function independently in everyday life, in children who have Down syndrome and autism than in those who have Down syndrome only. And we know broadly, from developmental research, that the sooner you intervene and find learning strategies that work for a child, the more opportunities that child has to develop skills that will support their learning and their long-term sort of day-to-day function and independent living.

So if they have Down syndrome and they also have autism, they may need different strategies early on that kind of set them up for success long term.

VINCE LARA: You know, I’m curious about your intellectual disabilities communication lab. Tell me what projects you have going on there.

DR. MARIE MOORE CHANNELL: Sure. So my primary project right now examines how children with Down syndrome apply their cognitive, language, and social emotional knowledge to social interaction, specifically looking at how they understand and communicate their understanding of other people’s mental states. That’s how they understand, and interpret, and talk about people’s emotions, their thoughts, their intentions, et cetera. And that’s really something that we call mental state language.

And through a grant funded by the NIH while here at Illinois, I was actually able to collect samples of school-aged children with Down syndrome telling stories. And from those stories, we recorded the stories, and we can go back and sort of cull them for four content later, and we were able to see the different kinds of mental state language that they’re using in their stories. And that’s really important, because there’s so much variability from one child to the next, just like any child.

VINCE LARA: Sure.

DR. MARIE MOORE CHANNELL: But in kids with Down syndrome, you also see a lot of variability. So we are interested in finding out what may help explain why some kids with Down syndrome were using a lot of mental state language in telling these really engaging stories and others were not. And so far we’ve seen that it’s not about their IQ, and it’s not about how old they are. It is, of course, about, partially, at least, their general language abilities– so their other vocabulary and grammar skills– but also about their emotion knowledge.

So the kids who are more able to recognize other people’s emotions are also then able to talk about emotions and use mental state language in their conversations, and empathize with others, and use that kind of language in their narratives and their storytelling. So we have a lot to do. But the early results, I think, really do suggest that we should focus on emotion knowledge and not just sort of traditional language when working with this population to improve their communication.

VINCE LARA: Can you explain a little bit about what mental state language is?

DR. MARIE MOORE CHANNELL: Sure. So it’s really when we are able to talk about or discuss our emotions. And so when we’re able to basically put our emotions into words, instead of just maybe sort of acting out and not really completely articulating that, so able to articulate our own emotions, but also actually being able to recognize other people’s emotions, and sort of what they’re thinking, and we call it perspective taking sometimes– so being able to kind of put themselves in someone else’s mental shoes is also really important.

And we do that when we communicate– we empathize. I can tell you’re feeling really angry, can we talk about this, for instance. And that’s really what mental state language is.

VINCE LARA: Interesting. Now, as we are in R1 facility, so research is always top-of-mind. I’m sure you have projects going on. Are there any that you particularly want to talk about that are in the pipeline for you and maybe close to finished manuscript?

DR. MARIE MOORE CHANNELL: Sure. I have to choose which of those to discuss, right?

VINCE LARA: That’s usually what happens. Yeah.

DR. MARIE MOORE CHANNELL: I guess I’ll start going back to the mental state language study.

VINCE LARA: Sure.

DR. MARIE MOORE CHANNELL: So really those are preliminary findings that I talked about that are accepted for publication in the American Journal of Speech-Language Pathology. But I have some other papers in the pipeline. We actually– these were school-aged children with Down syndrome– in addition to getting samples of their storytelling, we also had them sit down with their mothers and go through a story book together and recorded how their interact and converse with them during that sort of shared storybook time. And so we have a lot to do with analyzing– we still need to analyze sort of what kinds of things a mother say and do that may help sort of facilitate mental state understanding and mental state language in their children. So that’s one.

And then I would say the other two kind of big projects that are stemming from this, one is– you already mentioned it earlier– this idea of raising awareness of autism and down syndrome. So with my research I’m always collecting measures of sort of autism symptoms in the individuals with Down syndrome that I’m studying, so that I can report on what they look like. And ideally, over time, we can figure out sort of what autism exactly looks like and what may be some signs of autism in individuals with Down syndrome. Because, like I mentioned earlier, it is challenging to identify when someone already has some communication difficulties.

VINCE LARA: Sure.

DR. MARIE MOORE CHANNELL: So that’s another line of research. And then, long term, really, all of this– if the goal of this research really is to not only improve communication but really improve sort of day-to-day functioning and independent living long term for this population, I’m really interested in looking sort of beyond the school age years that transition from high school to independent living in the community. That’s something that is really grossly understudied in Down syndrome.

And we do a lot in the schools to provide services for these individuals while they’re there and to kind of try to set them up for the next steps, but then we don’t really know what happens after that. And so I would also like to use my research to track that. And through that, actually, I’ve established a collaboration with Dr. Meghan Burke in the department a special education here on campus and Dr. Susan Loveall-Hague at the University of Nebraska-Lincoln, where we’ve put together a survey so that we can more broadly sort of describe what’s happening.

And we put together a survey for caregivers of young adults with Down syndrome who are in that transition phase, just to get sort of a first pass of what’s going on with these families. We know that caregivers do a lot to support their young adults during this time, and just to kind of represent their voice, and figure out where we need to go next with our research.

VINCE LARA: My thanks to Dr. Channell. For more podcasts on Illinois’ College of Applied Health Sciences, search A Few Minutes With on iTunes, Spotify, iHeart Radio, Radio.com. and other places you get your podcast fix. Thanks for listening, and see you next time.

Related news

Mattie gets grant to study children with fragile X syndrome



Speech and Hearing Science Department assistant professor Laura Mattie is launching a study in August in hopes of developing ways to help children with fragile X syndrome communicate better.

Mattie received a grant of $454,977 over three years from The National Institute on Deafness and Other Communication Disorders (NIDCD), part of the National Institutes of Health, aimed at identifying the contribution of child and maternal gestures and responsive maternal language input to word learning opportunities, production practice, and spoken vocabulary growth for toddlers with fragile X syndrome (FXS).

Fragile X syndrome is an inherited genetic condition that causes a range of developmental delays, including learning disabilities and cognitive impairment. Affected individuals usually have delayed development of speech and language by the age of two.

Data collection will start on Aug. 1, Mattie said, and take place across the country.

“Fragile X syndrome is a rare neurogenetic disorder, so that means we will go to where the families live to collect the data,” she said. “It is easier for us to travel because the child participants are all toddlers.”

While existing research in FXS has revealed impairments in child gesture use, Mattie says in her abstract describing the study, no studies to date have examined the link between gesture use and the onset of first words prospectively.

“Our long-term goal is to develop and evaluate early language interventions for these children,” she said.

The term maternal language input is more than just a mom saying a word, and a child repeating it, Mattie said. “High-quality input involves what mothers are saying and how they use non-linguistic cues like gesture to connect their words to the objects children are playing with,” she said. “The timing of spoken words with the gesture cues also play a role in language learning.”

The study will involve toddlers with FXS and their biological mothers completing three assessments over a one-year period starting when the child is between 18 and 24 months. The mother and toddler will be observed to measure child gesture use, child vocabulary, and maternal gesture use and language input.

The ultimate goal, Mattie said, is helping children with FXS communicate. “It will improve their interactions with others in the community and helps with independence,” she said.

The next step for Mattie is conducting cross-syndrome comparisons between children with FXS and children with Down syndrome. A recent pilot grant from the Center on Health, Aging & Disability (CHAD) has allowed Mattie to examine similar skills in children with Down syndrome.

“Together these studies will support my long-term goal of designing early language interventions that build on the strengths of each population,” she said. “Early interventions have long-term and lasting effects on the outcomes of those who receive them.”

Editor’s note:

To reach Vince Lara-Cinisomo, email vinlara@illinois.edu.
 

Share on social

Related news

Rogers, Mudar receive $4.6M grant to establish center focused on older adults with cognitive impairment



The University of Illinois is part of a team receiving a $4.6 million grant aimed at helping adults with cognitive disabilties deal with challenges associated with everyday activities.

The grant from the National Institute on Disability, Independent Living, and Rehabilitation Research runs from Sept. 30, 2019 to Sept. 29, 2024 and is a collaborative effort with Weill Cornell Medicine and Florida State University, with Illinois’ share amounting to approximately $1.4 million.

Kinesiology and Community Health professor Wendy Rogers and Speech and Hearing Science associate professor Raksha Mudar are the principle investigators on the research for Illinois. Harshal Mahajan, assistant research professor of Kinesiology and Community Health, is also an investigator on the project.

The funding is for a Rehabilitation Engineering Research Center entitled ENHANCE (Enhancing Neurocognitive Health, Abilities, Networks, and Community Engagement).

Rogers and Mudar said the primary research aims are to understand challenges adults with cognitive disability deal with every day, and to identify existing and emerging technology that can help. Three segments of the population are part of the study group: Adults 60 and older with mild cognitive impairment, cognitive impairments due to stroke and those who have sustained a traumatic brain injury.

“What we’re trying to do is understand the challenges that they experience in their daily activities,” Rogers said. “In one study, we’ll be interviewing them about what they do outside the home, what they do around the home; shopping, transportation, health, finances and then just basic daily activities, such as mobility and medication regimen.”

Rogers said the study’s participants will include both the the individuals with cognitive disability as well as their family members who provide support and care. They will be exploring whether needs change over time, with interviews repeated across the five-year project.

“Really, we’re trying to get an understanding in general of people with cognitive disability on an everyday basis, what kind of challenges are they experiencing and how might we design technology to support that.”

Another goal is understanding what this population uses in terms of current technology to mitigate their impairments.

One of the projects, Rogers said, involves helping adults with cognitive disability use Google Maps and rideshare apps, through additional instructions and support, which could include an app on their phone that walks them through steps, or a video that illustrates what to do and helps them as they learn.

Mudar explained that they also plan to engage healthcare providers and the technology industry in hopes of developing partnerships.

Editor’s note:

To reach Vince Lara-Cinisomo, email vinlara@illinois.edu.
 

Share on social

Related news

College of Applied Health Sciences
110 Huff Hall
1206 South 4th Street
Champaign, IL 61820
(217) 333-2131